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CAB Steering Group Feedback

CAB Steering Group Feedback. Mark McPherson. What, why and who…. What: A representative group of people from within the CAB with an interest in the future of this group

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CAB Steering Group Feedback

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  1. CAB Steering Group Feedback Mark McPherson

  2. What, why and who… • What: A representative group of people from within the CAB with an interest in the future of this group • Why: To increase the number of people involved in preparing this meeting, reducing work for some and adding difference perspectives • Who: At the moment we are: Ben Cromarty, Robert James, Carmen Tarrades, Brian West….also with us in spirit were Badru Male and Fiona Pettitt

  3. What did we do? • Looked at what the CAB has done to date • Discussed its strengths • Looked for opportunities • Planned this meeting

  4. What do we want to do today • Feedback what we did • Get ideas for future events • Get ideas about the future role • Get ideas about how the group should be run

  5. Aims of the UK CAB • To provide a specialist treatment training programme • 3 speakers and a network sessions • Speakers include researchers and companies as well as group members • To strengthen the network of treatment workers and advocates • Discussing issues and advances • Community representation (eg BHIVA guidelines)

  6. What has the CAB been up to? • Established in 2002 • This is the 15th meeting • Past meetings have included: Trail Design; Resistance and Salvage Therapy; Pregnancy, Fertility and Sperm Washing; Access to Services for Refugees and Asylum Seekers; Statistics; Immunology and Children • They have been delivered in the style of meetings and training events • We have an active web based discussions group

  7. How do we compare? • ECAB - more focused on drug trial design and linkage to the pharmaceutical industry • French and German CABs - more activist based in a traditional sense involved with demonstrations etc.

  8. Strengths • Diverse and Representative • Delivers accessible information - without oversimplifying it. • Provides contact nationally (often where treatment maybe sub-optimal) • Affords community involvement in other policy forums

  9. Opportunities • Increase involvement in trials • Seek greater representation (pro-actively seeking key players to attend) • Create clearer policy lines and actions based on e-mail discussion • Be pro-active in the development of patient involvement across all Strategic Health Authority Regions • Take a view and lobby on issues regarding standard of care delivery as well as treatment efficacy

  10. What we will do next? • Have another steering group meeting after this one to plan the next CAB • Plan how to take forward your feedback • Look at how the next steering group should be formed

  11. Key Questions • Have you ideas for future events? • Have you ideas about the future role? • Have you ideas about how the group should be run?

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