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Stakeholder Engagement and Transparency in The Effective Health Care Program

Stakeholder Engagement and Transparency in The Effective Health Care Program. Supriya Janakiraman MD MPH AHRQ. Outline. Overview of the Effective Health Care Program Stakeholder engagement –examples of current activities and looking to the future Transparency

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Stakeholder Engagement and Transparency in The Effective Health Care Program

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  1. Stakeholder Engagement and Transparency in The Effective Health Care Program Supriya Janakiraman MD MPH AHRQ

  2. Outline • Overview of the Effective Health Care Program • Stakeholder engagement –examples of current activities and looking to the future • Transparency • Opportunities for involvement

  3. Effective Health Care Program • Comparative Effectiveness Research • Authorized under Sec. 1013 of MMA • To improve the quality, effectiveness, and efficiency of health care delivered through Medicare, Medicaid, and S-CHIP programs • Focus is on clinical effectiveness and comparative effectiveness

  4. Definition: HHS Comparative effectiveness research is the conduct and synthesis of research comparing the benefits and harms of different interventions and strategies to prevent, diagnose, treat and monitor health conditions in “real world” settings. The purpose of this research is to improve health outcomes by developing and disseminating evidence-based information to patients, clinicians, and other decision-makers, responding to their expressed needs, about which interventions are most effective for which patients under specific circumstances. Recovery Act Spend Plan, Office of the Secretary, 11/09

  5. Research Focus: Priority Conditions • Arthritis and non-traumatic joint disorders • Cancer • Cardiovascular disease, including stroke and hypertension • Dementia, including Alzheimer’s Disease • Depression and other mental health disorders • Developmental delays, ADHD and autism • Diabetes mellitus • Functional limitations and disability • Infectious disease including HIV/AIDS • Obesity • Peptic ulcer disease and dyspepsia • Pregnancy including preterm birth • Pulmonary disease/asthma • Substance abuse

  6. Effective Health Care Program • Evidence synthesis (EPC program) • Systematically reviewing, synthesizing, comparing existing evidence on treatment effectiveness. • Identifying relevant knowledge gaps. • Evidence generation (DEcIDE, CERTs, Research Grant Awards) • Development of new scientific knowledge to address knowledge gaps. • Accelerate practical studies • Evidence communication/translation (Eisenberg Center) • Translate evidence into improvements • Communication of scientific information in plain language to policymakers, patients, and providers.

  7. Program Outputs Research Reports Systematic Reviews Consumer Guides

  8. Conceptual Framework Stakeholder input & involvement

  9. Definition • Stakeholders - Persons or groups who have a vested interest in a clinical, research or health policy decision. • Public – Members of the general public identified without regard to medical background or experience.

  10. Stakeholder Engagement in Evidence Synthesis

  11. Stakeholder Engagement in Evidence Generation • Oncology, CV , & Diabetes Executive Committee – Includes AHRQ, Coordinating and Affiliate Center Data Committee Methods Committee Administrative Committee Project Manger Stakeholder Committee Clinical Committee

  12. Facilitate Informed Health Care Decisions by: • Patients • Providers • Policymakers Eisenberg Clinical Decisions and Communication Science Center Scientific Evidence Translation Understandable and Usable Information

  13. Stakeholder Group Twenty member volunteer committee representing clinicians, consumers, government, payers, and industry • Provides perspective on research gaps and methodology • Provides user perspective on EHC Program accountability and transparency • Identifies products most useful to decision-makers • Identifies opportunities for increased stakeholder involvement

  14. Community Forum • ARRA-funded initiative to expand and systematize public and stakeholder engagement in AHRQ’s Effective Healthcare (EHC) Program • Will develop and demonstrate deliberative methods and tools for obtaining informed public opinion as an input to decisions related to the conduct of comparative effectiveness research (CER), as well as the application of research results in policy and practice. • Will improve methods and opportunities for stakeholder engagement, working with the EHC program components to expand stakeholder involvement in research processes and activities. • Will support the EHC Stakeholder Group, including facilitating Stakeholder Group meetings, and managing logistical requirements.

  15. Transparency • Decisional • Disposition documents for topic nominations and selection criteria • Procedural • Methodological • Protocols posted • Key Questions posted • Draft Reports are posted

  16. Opportunities for involvement in the EHC Program • Nominate priorities and topics for research • Comment on key research questions and outcomes important to patients • Review draft documents

  17. Thank you. Effective Health Care Program • http://www.effectivehealthcare.ahrq.gov Supriya Janakiraman - supriya.janakiraman@ahrq.hhs.gov

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