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Understanding Cerebral Palsy: Awareness, Education, and Support for Families

This comprehensive program held in Nagpur on October 2nd and 3rd, 2011 aimed to raise awareness about cerebral palsy and its implications on children and families. It emphasized the importance of early diagnosis and intervention, collaborative research, and empowering communities for barrier-free access to care. By harnessing the expertise of various professionals, including therapists and educators, the program focused on strategies for rehabilitation, affordable assistive technology, and the importance of family involvement in advocacy. Together, we can create a supportive environment that promotes participation and quality of life.

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Understanding Cerebral Palsy: Awareness, Education, and Support for Families

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  1. CEREBRAL PALSY-WHAT DOES IT STAND FOR. PUBLIC EDUCATION PROGRAM NATIONAL CEREBRAL PALSY DAY-2ND& 3rd OCTOBER-2011 NAGPUR

  2. C-COMMUNITY AWARENESS-Children are human beings &not becomings- [A.Colver]

  3. E-EARLYDIAGNOSIS &INTERVENTION

  4. R- RESEARCH FOR ACTION & CARE Orthotists Orthopedic Surgeon Occupational Therapist Pediatrician neurologist Family Physio- Therapist- Teachers Special Educator Psychologist MANY IS NOT MERRY ALWAYS!- cohesive action & reality limitations.

  5. E-ENABLE, EDUCATE & EMPOWER

  6. B- BARRIER FREE ACCESS, A BIRTH RIGHT.

  7. R- REHABILITATION, A COLLECTIVE GOAL.

  8. A- AFFORDABLE ASSISTIVE TECHNOLOGY.

  9. L- LIFE SPAN HEALTH & LIVELYHOOD

  10. P- PARTICIPATION

  11. PREVENTION PATHWAYS- CASCADE –CUMULATIVE NEURONAL DEATH O2 ↓, Ca ↓ ,Glucose ↓ , Genetics ,Iodine ↓, substrate deficits,kernicterus Maternal health ( micro{Stress} & macro) ,Fac v Leiden , ApoE 3&4, Family history, Trauma, Intra uterine Infections, Placental inflammation. Menstrual irregularities, IUGR, Multiple pregnancies,IVF pregnancies, Breech presentation, Preterm births, Antenatal, Intranatal & perinatal care. • EXCITOTOXIC CASCADE –Confluence of multiple factors ->cumulative neuronal death

  12. ATTITUDINAL CHANGE. “The problem is not how to wipe out the differences but how to unite with the differences intact”. – RabindranathTagore

  13. ADVOCACY- Cohen2001 • Advocacy means pursuit for influencing outcomes; outcomes that affect people’s current lives. • Care is a learned attribute where as advocacyimplies active effort emerging out of strongscientific fundamentals

  14. LOOK AT OPTIMALITY THAN NORMALITY LOOK AT OPTIMALITY THAN NORMALITY-Therapists &Parents

  15. S-SCIENCE FOR DEVELOPMENT • STEM CELLS Physical therapy • surrogates-whole • body vibrators ,trans • cranial magnetic • stimulation, neuro • protection -receptor • specific molecules • Computer assisted & • robotic training

  16. Y- YEARS OF CREATIVE WORK IN NEURODISABILITY • FUNCTION. • FAMILY. • FRIENDSHIP. • FUTURE. • FITNESS . • ALL IN THE CONTEXT OF FUN [Dr.Gorter] • ENSURE THESE FIVE F’S

  17. Parenting with out pretensions Families with inadequate coping Positive families ROLE MODELS FENCE SITTERS Enmeshed families CHALLENGING

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