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Psychosocial Aspects of Sickle Cell and Thalassaemia

Sickle Cell & Thalassaemia Service Anndeloris Chacon R.G.N. Clinical Coordinator Thursday 29 th October 2009. Psychosocial Aspects of Sickle Cell and Thalassaemia.

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Psychosocial Aspects of Sickle Cell and Thalassaemia

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  1. Sickle Cell & Thalassaemia Service Anndeloris Chacon R.G.N.Clinical Coordinator Thursday 29th October 2009

  2. Psychosocial Aspects of Sickle Cell and Thalassaemia

  3. Aim: To look at how Sickle Cell and Thalassaemia affect the lives of those with the disorder, their family, education and other aspects.

  4. Major themes identified after • listening to the clients were and are: • Fear Death Stigma Disruption

  5. Continuous education for the clients Conditions Medication Complications Self Management

  6. Raising awareness of the clients’ perceptions with professionals and families Professionals/family disbelief Labels (lazy, drug addict, etc)

  7. How physical and socio-economic stressors affect these disorders Housing Education Employment Socialising

  8. These themes were addressed through 1. Educational sessions for clients, families/carers, professionals and others

  9. 2. Psychological Support Psychotherapy [1 to 1 and a group session] Reflexology Aqua massage (dry hydrotherapy) Psychology

  10. 3. Trial of home care support when managing crises at home alone Cleaning of the home Collection of medication Someone to visit after discharge

  11. How can we help the clients to live to their optimum level of well-being? LISTEN DISCUSS

  12. ASK QUESTIONS do not ASSUMEBE MINDFUL OF THE LABELS we give to the clients – this stays with them for life

  13. Solution: Provide individualised, client centred holistic care

  14. Vision: Sickle Cell and Thalassaemia Services will provide for each client with coordinated services which deliver access and support to maintain/increase their optimum level of well-being.

  15. Outcome: An empowered client with excellent self management who receives support and advice for the service.

  16. Coordination of Hierarchy of Needs Client at the centre Services around to support well-being

  17. Thank you for listening.

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