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A descriptive analysis of the Swedish palliative research network - PANIS

A descriptive analysis of the Swedish palliative research network - PANIS. Margret Skuladottir, MD, Malmö SAH Staffan Lundström, MD, Stockholms Sjukhem. Aim of the study. To survey all participating units concerning: Organization Patient selection Contents of care Documentation. Methods.

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A descriptive analysis of the Swedish palliative research network - PANIS

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  1. A descriptive analysis of the Swedish palliative research network - PANIS Margret Skuladottir, MD, Malmö SAH Staffan Lundström, MD, Stockholms Sjukhem

  2. Aim of the study • To survey all participating units concerning: • Organization • Patient selection • Contents of care • Documentation Palliative research network in Sweden - PANIS

  3. Methods • Questionnaire with 38 questions designed. • Pilot test. • Sent to all 43 units by e-mail in December -04. • Completed by the local members of the network. • 42 units answered • Answers analyzed in Excel database. Palliative research network in Sweden - PANIS

  4. Organisation-affiliationall 42 units replied Palliative research network in Sweden - PANIS

  5. Starting year for units Palliative research network in Sweden - PANIS

  6. The doctors specialitiesall 42 units replied Palliative research network in Sweden - PANIS

  7. Organizationall 42 units replied Number of units with respective service 29 24 6 16 Palliative research network in Sweden - PANIS

  8. Numbers of doctors per patient Palliative research network in Sweden - PANIS

  9. Number of nurses per patient Palliative research network in Sweden - PANIS

  10. Number of units having different occupational groups As members of As consultants to the team the team Staff nurse (usk) 24 0 Physiotherapists 32 5 Occupational therapists 31 4 Sociologists 33 1 Psychologists 0 6 Priests / deacons 13 14 Dietician 8 14 Palliative research network in Sweden - PANIS

  11. Diagnosis • Cancer mean 90% of all patients (range 70-100% ) • Non-cancer mean 10% (range 1-10%) Heart failure <1% - 10% CPD <1% - 14% Neurological diseases <1% - 6% HIV / AIDS <1% - 2,5% • 45% of the units include patients < 18 years. Palliative research network in Sweden - PANIS

  12. Number of patients or ”beds” 12 out of 16 counselling teams had no limitations regarding number of patients able to enrol. Palliative research network in Sweden - PANIS

  13. Mean duration of care Palliative research network in Sweden - PANIS

  14. Number of deaths per year Palliative research network in Sweden - PANIS

  15. How many of the 42 units used symptom assessment tools ? 41 out of 42 units replied Palliative research network in Sweden - PANIS

  16. 93% of units do teaching 24% of units have some form of research activity. Teaching and research Palliative research network in Sweden - PANIS

  17. Documentation Paper 29% Computer 70% Palliative research network in Sweden - PANIS

  18. Discussion • Data collection was done using a questionnaire developed by the authors. • High response rate • A few questions were difficult for some units to answer due to the structure of their databases. • Large variation between the units might reflect: • different local needs and conditions, • differences in patient selection in the units, • differences in the definition of services. Palliative research network in Sweden - PANIS

  19. Conclusions • Still largely focused on cancer • 20% of cancer deaths in Sweden within PANIS • Large variation between different units • (e.g. duration of care). • PANIS provides a growing database, facilitating research in palliative care. Palliative research network in Sweden - PANIS

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