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MOVING FORWARD AFTER TREATMENT A Free Conference for Adolescent Childhood Cancer Survivors

How To Register: Please complete the registration form below : E -mail/mail/fax to: Molly Tower PNP mtower@partners.org Tel: 617-643-7664 / Fax: 617-724-0702 Mass General Hospital, Long Term Follow-up Clinic Yawkey 8B, 55 Fruit St. Boston, MA 02114 Name of Patient Survivor

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MOVING FORWARD AFTER TREATMENT A Free Conference for Adolescent Childhood Cancer Survivors

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  1. How To Register: Please complete the registration form below : E -mail/mail/fax to: Molly Tower PNP mtower@partners.org Tel: 617-643-7664 / Fax: 617-724-0702 Mass General Hospital, Long Term Follow-up Clinic Yawkey 8B, 55 Fruit St. Boston, MA 02114 Name of Patient Survivor ________________________________Age_________ *Must be 12 – 18 years old and off treatment Name of Parent(s)/Guardian(s) _____________________________________________ Email/Phone number _____________________________________________ Treating Cancer Center Total # of persons attending __________________________ __________________ MOVING FORWARD AFTER TREATMENT A Free Conference for Adolescent Childhood Cancer Survivors (ages 12 – 18) and Their Parents SCHEDULE 8:30-9:30 Breakfast and Registration 9:30-10:00 Welcome and Opening Remarks 10:00-10:30 Keynote Speaker - Jennifer Earls A Survivor’s Journey 10:30-12:00 Childhood Cancer Survivor Panel A Panel of Survivors– Sharing their Stories –Question and Answer 12:00-1:00 Lunch 1:00-1:45 Workshop Session 1 1:45-2:30 Workshop Session 2 2:30-3:30 Late Effects – Panel of Experts Sanjeev Francis MD – Cardiologist MGH –Cardio-Oncology Program Laurie Cohen MD –Pediatric Endocrinologist – DFCI Christine Trask PhD – Neuropsychologist – Hasbro NaheedUsmani MD – Pediatric Oncologist – U Mass Medical Erin Barlow MD – Adolescent Gynecology Peter Manley MD – Brain Tumor Specialist 3:30-4:00 Program Conclusion Saturday, March 15th, 2014 8:30 a.m. – 4:00 p.m. • *We will not be able to accommodate for siblings. • You may attend 2 workshops. Please list 3 workshops, in order of preference, you would like to attend, as space may be limited. • Parent/Guardian • ____________________ • ____________________ • ____________________ • Parent/Guardian • ____________________ • ____________________ • ____________________ • Patient Survivor • ____________________ • ____________________ • ____________________ Conference Location: Hole in the Wall Gang Camp 565 Ashford Center Rd Ashford, Connecticut 06278 Sponsored by: CONNECCS Consortium for NewEnglandChildhoodCancerSurvivors and The Hole in the Wall Gang Camp

  2. Connecticut Children's Medical CenterREACH for the STARS Survivorship ProgramHartford, CT phone: 860-545-9630 Yale University Medical Center HEROS ClinicYale-New HavenChildren's Hospital Pediatric Specialty ClinicNew Haven, CT 06510phone -203-785-4640 Choosing a Healthy Lifestyle – Nutrition and exercise are important to making you feel good physically and emotionally. This fun workshop will provide latest tips to apply to your everyday life to optimize your long term health. Facilitated by Katlyn Stefanski RD, Marcy Gunning, PT WORKSHOPS 1:00-1:45 p.m. 1:45-2:30 p.m. (All Workshops run in both sessions) Eastern Maine Medical CenterPediatric Hematology/OncologyBangor, ME 04401phone: 207-973-7572 Maine Children‘s Cancer ProgramPost Therapy Wellness Clinic Scarborough, ME 04074phone: 207-396-7565 Advocating for School Support, Preparing for College and the Work Force – A discussion with experts on how to advocate for yourself/your child. Topics include: Neuropsychological testing, IEP’s, 504 plans, College and Vocational Planning, Scholarships. Facilitated by Christine L. Trask PhD, ABPP, Pedi- Neuropsychologist, Hasbro, Lisa Northman, PhD, Staff Psychologist, DFCI Marybeth Morris, Ed.M., School Psychologist, DFCI Creative Expressions Through Art- Discover your creative side with a variety of artistic materials. Come see why a picture is worth a 1000 words. No artistic talent require, just bring your creative energy! Facilitated by Christine Tatem CCLS, Christina Marchitto, MSW, John Paul Shoup MassGeneral Hospital for ChildrenLong Term Follow-up ClinicBoston, MA 02114phone: 617-726-2737 Floating Hospital for Children/Tufts New England Medical CenterHematology and OncologyBoston, MA 02111 phone: 617-636-5535 | fax: 617-636-7738Dana-Farber Cancer InstituteStop and Shop Family Pediatric Neuro-oncology Outcomes Program Brain Tumor ClinicBoston, MA 02215-5450phone: 617-632-2680Dana-Farber Cancer InstituteDavid B. Perini Jr Quality of Life ClinicBoston, MA 02215-5450phone: 617-632-5124 Your Song. Your story. Your groove. Each of us has a story to share, some through words and poetry, others through songs, beats, and just rocking out! Come start that process with us. Come explore Next Step’s Song . Studio, and win fabulous prizes. No musical experience Necessary!!! Facilitated by: Kimberly Khare, MA, CMT – Director of Music Therapy at Next Step, Lorrie Kubicek MT – BC, Music Therapist MGH, Mike Simonelli MT-BC, Music Therapist SEEM - Collaborative Affordable Care Act – What does it mean for Childhood Cancer survivors? – A discussion of how to navigate new health care law and it affects the life long health care of childhood cancer survivors. Question and answers. Facilitated by Elyse Parks. PhD. Psychologist Mass General Hospital UMass Memorial Medical CenterUMass Survivors ClinicWorcester, MA 01655phone: 508-856-4225 Baystate Medical CenterPediatric Hematology & OncologySpringfield, MA 01199phone: 413-794-9338 Overview of Late Effects An updated review of late effects from cancer treatment, including chemotherapy, radiation, Surgery, and bone marrow and stem cell transplantation. Presentation by NaheedUsmani, MD Pediatric Oncologist, U Mass Medical Center Reconnecting Socially after Cancer – A presentationand discussion on how to navigate reconnecting with friends, family and the non-medical world. Explore various ways of reconnecting and sharing - different forms of social media, (texting, Instagram, Facebook) talking one on one, going out with friends, dating, exploring new ways of meeting new friends. Facilitated by Annah N. Abrams, MD Child Psychiatrist, MGH, Giselle K. Perez, Ph.D Research and Clinical Fellow, MGH Children's Hospital at DartmouthPediatric Hematology and Oncology One Medical Center Drive phone: 603-650-5541  Reproductive Health This presentation will provide an overview of concerns of cancer survivors regarding reproductive health. Facilitated by Erin Barlow M.D.- Adolescent Gynecology, Lisa Kenney MD Pediatric Oncology Hasbro Children's HospitalCHAMPS ProgramProvidence, RI 02903phone: 401-444-5241 Vermont Children’s Hospital at Fletcher AllenPediatric Oncology Long Term Follow Up ClinicBurlington, VT 05401phone: 802-847-2850

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