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Standards & Interoperability (S&I) Structured Data Capture (SDC) Forms Sub Work Group (SWG)

The S&I Structured Data Capture (SDC) Forms Sub-Work Group held a weekly meeting on December 11, 2013. The agenda focused on updates to XML/XSD, gathering further comments, and discussing next steps regarding Common Data Elements (CDE) and Data Elements (DE). The meeting defined fixed representations of variables for data collection in specific domains, emphasizing the need for precise questions, specified response formats, stewardship, and clarity for both human and machine understanding. These standards are crucial for creating standardized surveys and research instruments.

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Standards & Interoperability (S&I) Structured Data Capture (SDC) Forms Sub Work Group (SWG)

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  1. Standards & Interoperability (S&I)Structured Data Capture (SDC)Forms Sub Work Group (SWG) Weekly Meeting (#1) December 11, 2013

  2. Agenda

  3. XML/XSD update Further Comments Next Steps

  4. CDE/DE discussion Definition: • Fixed representations of variables to be collected and analyzed in a particular domain • Consists of: • Precisely defined question (and alllowed variants) • Specified format or set of permissible values for response (answer) • Steward or responsible entity • Defined unambiguously in both human and machine-computable terms • Can be used to create standardized questionnaires, survey instruments, and case report forms • Used for data collection in research, patient registries and surveillance studies

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