linking data to enhance ehdi outreach efforts in massachusetts n.
Download
Skip this Video
Loading SlideShow in 5 Seconds..
Linking Data to Enhance EHDI Outreach Efforts in Massachusetts PowerPoint Presentation
Download Presentation
Linking Data to Enhance EHDI Outreach Efforts in Massachusetts

play fullscreen
1 / 15

Linking Data to Enhance EHDI Outreach Efforts in Massachusetts

112 Views Download Presentation
Download Presentation

Linking Data to Enhance EHDI Outreach Efforts in Massachusetts

- - - - - - - - - - - - - - - - - - - - - - - - - - - E N D - - - - - - - - - - - - - - - - - - - - - - - - - - -
Presentation Transcript

  1. Linking Data to Enhance EHDI Outreach Efforts in Massachusetts Massachusetts Department of Public Health Penny Liu, Sarah Stone, Janet Farrell March 3, 2005

  2. Snapshot of Massachusetts • 81,000 births per year • 53 birth hospitals/centers • 26 state-approved Audiologic Evaluation Centers (AECs) • 70 Early Intervention (EI) programs • All children with hearing loss are eligible for EI services

  3. Childhood Hearing Data System • State-developed system • Data support for • monitoring progress • identifying gaps • Case management • Collaboration capacity

  4. CHDS: Data Sources EBC Legal/Demographic Medical/Confidential Hearing Screening Audiologic Evaluation Procedures Type/Degree of Loss Risk Indicators CHDS Family Intake Follow-up/Referral Early Intervention Medical Home EIIS

  5. MA Accomplishments • 99% screening rate* • 1% refer rate* • 86% of the DNP received diagnostic evaluation** • 11% “true” lost to follow up • 3% others (e.g., non-consents, evaluated at non-AECs) • 71% of those with hearing loss enrolled in EI • * Data are based on birth cohort 2002-2004. • ** Data are based on the state-approved AECs reports only.

  6. Strategies to Success • Passage of newborn hearing screening law • Establishment of Advisory Committee • Amendment of birth facility licensure regulations • Development of guidelines for birth facilities and diagnostic centers • Development of outreach program

  7. Lost-to-Follow-Up 2002-2004, MA* * Lost to follow up is defined as those who did not pass the screen and did not receive a diagnostic evaluation. Data exclude non-consents, “sealed” records, and non-AECs evaluations.

  8. Lost-to-Follow-Up MA vs. US* * US data are based 2001data reported by 27 states. MMWR 52 (41):981-984. MA data are based 2002-2004 birth cohort, excluding non-consents, “sealed” records, and non-AECs evaluations.

  9. Lost-to-Follow-Up in MA*by Laterality of Referral aOR** = 1.23 (0.91, 1.64) N = 696 N = 1,715 * Data are based on birth cohort 2002-2004. * * Adjusted odds ratio, adjusting for child’s birth weight, maternal age, race/ethnicity, education, preferred language, health insurance, and residential region.

  10. Lost-to-Follow-Up in MA*by Maternal Education aOR** = 1.71 (1.21, 2.42) N =388 N = 2,023 * Data are based on birth cohort 2002-2004. * * Adjusted odds ratio, adjusting for child’s birth weight, laterality of referral, maternal age, race/ethnicity, preferred language, health insurance, and residential region.

  11. Lost-to-Follow-Up in MA*by Health Insurance aOR** = 2.68 (1.93-3.71) N = 1,400 N = 787 * Data are based on birth cohort 2002-2004. * * Adjusted odds ratio, adjusting for child’s birth weight, laterality of referral, maternal age, race/ethnicity, education, preferred language, and residential region.

  12. Lost-to-Follow-Up in MA*by Residential Region aOR** = 3.48 (2.20-5.50) N = 112 N =2,299 * Data are based on birth cohort 2002-2004. * * Adjusted odds ratio, adjusting for child’s birth weight, laterality of referral, maternal age, race/ethnicity, education, preferred language, and health insurance

  13. From Data to Action • Educate providers on the importance of follow-up • Collaborate with other state programs and supporting services to reach out to high-risk families • Improve communication with hospital social service departments and other care coordination for families

  14. Acknowledgement • Nancy Wilber, Principal Investigator • Martha deHahn, Parent Outreach Specialist • Jessica MacNeil, Epidemiologist • Amy DeCoste, Outreach Specialist

  15. Massachusetts Universal Newborn Hearing Screening Program http://www.mass.gov/dph/fch/unhsp/index.htm Newborn.Hearing@state.ma.us 617-624-5959