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Cleft Lip and Palate

Cleft Lip and Palate. What is it?. ‘Cleft’ means ‘split’ or ‘separation’ During pregnancy, parts of the face form separately and then join together. Sometimes they don’t join properly and the result is a ‘cleft’

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Cleft Lip and Palate

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  1. Cleft Lip and Palate Registered Charity England & Wales (1108160) and Scotland (SC041034)

  2. What is it? • ‘Cleft’ means ‘split’ or ‘separation’ • During pregnancy, parts of the face form separately and then join together. Sometimes they don’t join properly and the result is a ‘cleft’ • One in 700 babies are born with a cleft. In the UK, that’s threeevery day and over 1,000 every year, just like little Poppy here! Registered Charity England & Wales (1108160) and Scotland (SC041034)

  3. What is it? • A ‘cleft lip’ is a split in the upper lip. It can be on one or both sides of the mouth, and can be a small notch or extend fully up into the nose and gum, which can change the shape of the face. • A ‘cleft palate’ is a split in the roof of the mouth. • A baby can be • born with a cleft • Lip or a cleft palate, • or both a cleft lip • AND palate. Unilateral Cleft Lip Bilateral Cleft Lip Registered Charity England & Wales (1108160) and Scotland (SC041034)

  4. Famous people with a cleft include… Richard Hawley Singer/Songwriter Tom Burke Actor Jesse Jackson Civil Rights Activist Joaquin Phoenix Actor Carmit Bachar Pussycat Doll Tutankhamun Egyptian Pharaoh

  5. Why Does It Happen? • It occurs in the first three months of pregnancy • There is no single explanation • Sometimes it is because the parents or other family members also have a cleft (genetic) • A lot of the time it happens because of many different reasons all working together in a way that no one could predict • There is no way to prevent it Registered Charity England & Wales (1108160) and Scotland (SC041034)

  6. How is it treated? • SURGERY • Surgery is needed to close the gap in the lip and/or palate. This will usually take place before a baby’s first birthday! • The operation to repair a cleft lip will normally be within the first 2-3 months. • The operation to repair a cleft palate usually takes place between 6-12 months. • More surgeries may be needed depending on the child and their cleft. Registered Charity England & Wales (1108160) and Scotland (SC041034)

  7. How is it treated? • Other Treatments Include: • Hearing aids or grommets to help with hearing problems caused by a cleft palate. • Speech therapy to help children pronounce certain sounds and speak more clearly once their cleft is repaired. • Dental work and bracesto help teeth grow properly. • More surgery at 8-10 years old, as a teenager and even as an adult to help with teeth placement and facial growth. Registered Charity England & Wales (1108160) and Scotland (SC041034)

  8. Every cleft is unique! Registered Charity England & Wales (1108160) and Scotland (SC041034)

  9. What is ‘CLAPA?’ • The Cleft Lip and Palate Association is a charity set up in 1979 to help patients, families and health professionals work together to support people affected by cleft lip and palate. • Our vision is: “A society where having a cleft lip and/or palate is no barrier to achieving your desires and ambitions” • We believe that everyone affected by cleft lip and palate should get the best possible information, care and support throughout their lives. Registered Charity England & Wales (1108160) and Scotland (SC041034)

  10. What Does CLAPA Do? Family support Free weekend camps for kids Services for children & young people Adult support & advice Training volunteers Feeding equipment and info Working with schools

  11. Thank You! Registered Charity England & Wales (1108160) and Scotland (SC041034)

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