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Enhancing Community-Based Treatment Options for Children: A Collaborative Approach

This project aims to improve community-based treatment alternatives for children through a consumer-led evaluation process. Funded by a $100,000 federal grant, the initiative involves assessing barriers to community-based services and developing actionable recommendations to enhance service delivery. Key accomplishments include establishing a Governance Council comprised of parents, stakeholders, and service representatives, alongside improved family satisfaction. Future steps focus on expanding available services, enhancing therapeutic options, and procuring additional funding to support ICG families effectively.

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Enhancing Community-Based Treatment Options for Children: A Collaborative Approach

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  1. Community-based Treatment Alternatives for Children Amy Starin & Ray Connor 9/23/04

  2. Goals • Consumer led evaluation and assessment process • Assess barriers and limitations to the community-based ICG alternative • Develop and implement recommendations for improved services

  3. Background • $100,000 federal grant from Dept. of Health & Human Services, Center for Medicare & Medicaid Services • Ray Connor, Parent & Amy Starin, DMH co-principal investigators • Governance Council – the principal investigators, 4 other ICG parents, 3 SASS reps, an IFF rep and the ICG director

  4. Background (continued) • Illinois Federation of Families (IFF) fiscal agent • Approximate 18 month duration

  5. Outcomes • Improved services allow more ICG families to use the community-based option • Improved family satisfaction based on surveys • More funding available through expanded use of Medicaid

  6. Accomplishments • Staffed Governance Council with over 50% consumers. • Created effective project team verified by the Wilder Collaboration Factors Inventory • Obtained opinions and recommendations from 58 ICG family members • Obtained opinions and recommendations from 15 SASS agencies statewide

  7. Accomplishments (continued) • Obtained opinions and recommendations from 6 ICG teens • Analyzed stakeholder recommendations • Developed service recommendations linked to stakeholder input

  8. Recommendations • Service Improvements • Expand SASS Role in Support of ICG Children and Families • Expand Availability and Improve Therapeutic Stabilization (Respite) Services • Improve Availability of Therapeutic Recreation

  9. Recommendations • Additional Funding through Increased Medicaid Eligibility and 1915C Waiver • Administrative • Expand ICG Office Support for ICG Families • Modify ICG Rule to Allow Additional Community-Based Services

  10. Remaining Steps • Develop implementation plan • Produce plan for Medicaid waiver • Evaluate best practices through a focus group of successful parents • Procure new services

  11. Summary • Stakeholder identification of barriers and issues with community-based ICG services • Consumer led identification of new and changed services • Recommendations to Illinois DHS and legislature • Implement new services

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