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Spirit of EAGLES - North Central

The Spirit of EAGLES project, part of A Great Lakes NARCH initiative, aims to enhance cancer surveillance among American Indian communities in Wisconsin. Through collaborations with tribal clinics, the project conducts retrospective studies, data reporting, and analysis, fostering mutual educational benefits and promoting changes in practice based on local insights.

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Spirit of EAGLES - North Central

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  1. Rick StricklandSpirit of EAGLES University of Wisconsin Comp. Cancer Ctr.strickla@uwccc.wisc.edu608.262.0072 Spirit of EAGLES - North Central NARCH: Improving American Indian Cancer Surveillance and Data Reporting in Wisconsin

  2. Project Background • A Great Lakes NARCH project • LOI reviewed/selected by tribal health directors • Create a cancer profile: a retrospective study of cancer cases in tribal clinic records • Exempt study: only clinic staff see PHI • Implementation agreements negotiated with each tribe/urban center

  3. Cancer Profile Process • Negotiate agreement with Tribal/Urban clinic • Initial training on profile process / form • Modification of form w/ clinic questions • Data abstraction and ongoing consultation • Data entry and quality control • Preliminary analysis w/clinic & GLITC staff • Finalize tribal report • Present results to clinic representatives • Aggregate analysis, report & publication

  4. Preliminary Analysis • Epidemiologist at Great Lakes Inter-Tribal Council prepares an analysis • SOE staff review GLITC analysis and prepare draft report • Draft report sent to tribal staff; meeting scheduled • Hold on-site analysis meeting with GLITC, SOE staff, tribal staff and other tribal representatives • Record, revise and prepare draft final report • Send draft final report and consult by telephone

  5. Mutual Benefits of Preliminary Analysis in this Project • Educational opportunity for all parties • New questions…and data requests • Unique interpretative insights • Opportunity to evaluate record data & quality • Identification of possible changes in practice • Capacity / limits of statistics with small numbers of cases • Value of local knowledge

  6. Notes on Community Consultation • Key issues: experience / trust / time available / funding support / capacity • Tribal partners are busy • Will decide when and how to be involved • Involvement varies with the project • Community and academic reward strucutres differ

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