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Join HFEA Authority Member Alan Thornhill in improving data effectiveness. Explore forms, validation, verification, and clinic data through stakeholder collaboration. Engage in expert groups and contribute to data submission and dictionary. Email: InformationForQuality@HFEA.gov.uk.
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26 February 2014 • Alan Thornhill • HFEA Authority Member • Helping us build better data collection systems
What is the aim of Information for Quality? To improve the effectiveness of the information we hold and collect, by reviewing our: forms validation rules verification procedures clinic portal choose a fertility clinic publishable information website
Working with stakeholders Data submission Data dictionary ADVISORY GROUP Data warehouse and analytics Digital Four expert groups Wider stakeholder engagement
Expert groups Purpose: To look into the detail of each project To tackle technical/controversial issues To consider the requirements of all stakeholders and define a reasonable balance between differing perspectives To engage with centre staff and wider stakeholders throughout the process
Two of the projects Data dictionary What is a data dictionary? Developing and defining the dataset Providing a clear rationale for each piece of data requirement Data submission Deliver effective mechanisms for the submission of data to the HFEA
We want you to get involved There are still spaces on each expert group. We are looking for: Clinic staff Researchers Patients Donors Donors conceived people