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Supporting Families Impacted by Congenital Heart Defects: A Community of Hope

Congenital Heart Defects (CHDs) are the most common birth defects, leading to significant challenges for affected infants and their families. Our support group offers resources and companionship for families navigating the complexities of CHDs, including ongoing follow-up with cardiologists, activity modifications, and surgical care. Our monthly social and educational events foster connection among families, with activities like pool parties and holiday gatherings, allowing children to bond over shared experiences. We also contribute to vital research, having donated $5 million towards CHD studies.

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Supporting Families Impacted by Congenital Heart Defects: A Community of Hope

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  1. Change for Hearts

  2. Congenital Heart Defects (CHD’s) • When a baby is born with a heart problem • Most common birth defect • Leading cause of infant death in the US • Lifelong follow up with cardiologist (heart doctor) • Sometimes activity limitation, medicine, catheterization/surgery

  3. Aaron was “blue” before his surgery

  4. Aaron needed to eat through a tube after surgery because he didn’t learn how to swallow when he was born

  5. Carson after heart surgery

  6. Kara after heart surgery

  7. Is a support group • Family Matching • Heart Bags • Monthly social or educational events

  8. Pool Party The kids can see they are not the only one with a heart scar

  9. Christmas Party Kids and parent’s can have happy memories of being at the hospital

  10. Monthly get-togethers • Parents can talk and help each other • Kids can hang out and help each other • Speakers come and share their experience

  11. Gives money to research the diagnosis, treatment and prevention of CHDs • Has contributed $5 million toward 48 CHD research studies

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