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Measurement of Social Participation Outcomes in Rehabilitation of Veterans with Traumatic Brain Injury

This study aims to improve the measurement of social participation in veterans with traumatic brain injury (TBI) to evaluate rehabilitation treatments effectively. It reviews different conceptual models, measurement instruments, and research needs related to participation measurement. Results highlight established and emerging assessment tools and identify research gaps that need to be addressed. Recommendations include developing an evidence-based synthesis program priority, implementing a "Rehabilitation Medicine Assistant" program for electronic medical records, and ensuring that participation measurement enhances rehabilitation quality.

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Measurement of Social Participation Outcomes in Rehabilitation of Veterans with Traumatic Brain Injury

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  1. Measurement of social participation outcomes in rehabilitation of veterans with traumatic brain injury William Stiers, PhD; Noelle Carlozzi, PhD; Alison Cernich, PhD; Craig Velozo, PhD; Theresa Pape, PhD; Tessa Hart, PhD; Suzy Gulliver, PhD; Margaret Rogers, PhD; Edgar Villarreal, MS; Shalanda Gordon, PhD; Wayne Gordon, PhD; Gale Whiteneck, PhD

  2. Study Aim • Consider issues in improving measurement of social participation in veterans with traumatic brain injury (TBI) to increase meaningful evaluation of rehabilitation treatments. • Relevance • An estimated 4%–20% of veterans have TBI. • Must evaluate whether rehabilitation activities meaningfully improve the lives of veterans with TBI, especially their community and vocational participation.

  3. Methods • Discuss conceptual models of participation. • Review participation subdomains and their measurement instruments. • Identify current research issues and needs related to participation measurement. • Make suggestions for future development of participation measures.

  4. Results • Established and emerging assessment tools: • Community Integration Questionnaire. • Participation Objective–Participation Subjective Scale. • Participation Assessed with Recombined Tools. • Mayo-Portland Adaptability Inventory 8-Item Participation Index. • Traumatic Brain Injury-Quality of Life. • Deployment-Related Traumatic Brain Injury/Polytrauma-Quality of Life. • Research gaps: • It is important to combine classic test theory with item response theory in measuring participation. • Limitations in reading unidimensional structure and inconsistencies in item-difficulty ordering suggest that a unidimensional model may not apply to participation. • Self-report reliability may be affected by TBI-specific cognitive impairments.

  5. Conclusions • Recommendation for moving field forward: • Develop an evidence-based synthesis program priority. • Develop a “Rehabilitation Medicine Assistant” program for electronic medical records. • Ensure that measurement of participation enhances rehabilitation quality.

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