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Advancing Public Health for Individuals with Spina Bifida: Key Findings and Initiatives

This summary highlights critical discussions from the CDC's 2007 Annual Meeting focused on disability and health, particularly regarding spina bifida. It reviews various evidence-based interventions aimed at promoting wellness, improving emergency preparedness, and fostering livable communities for affected individuals. The meeting also addressed health disparities, emphasizing the need for targeted research on obesity, mental health outcomes, and comprehensive transitional care. Additionally, there is a call for collaboration among professionals to establish best practices and elevate public health roles for youth with spina bifida.

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Advancing Public Health for Individuals with Spina Bifida: Key Findings and Initiatives

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  1. CDC UPDATE Mark E. Swanson MD, MPH Disability and Health Team AUCD Annual Meeting November 12, 2007 (Federal holiday!)

  2. CDC STATE GRANTEE LIST BY FUNDING MODULE. Modules A. Implement evidence based interventions. B. Wellness through access, health promotion, and health communication. C. Emergency preparedness. D. Livable communities/ universal design. E. Training professionals and paraprofessionals. F. Supplemental surveillance.

  3. CDC STATE GRANTEE LIST

  4. PUBLIC HEALTH ROLE IN TRANSITION • RTOI Spina Bifida Projects • Longitudinal study of young adults with spina bifida at Partners for Inclusive Communities, University of Arkansas, looking at obesity, social isolation and depression as outcomes • Cross-sectional, multi-site study of young adults with spina bifida, coordinated at University of Indiana, looking at quality of life and independence as outcomes

  5. PUBLIC HEALTH ROLE IN TRANSITION • Transition summit held in September 2007 • Developed list of issues for youth with spina bifida • Those attending the meeting will form working groups to develop list of ‘best’ and ‘promising’ practices, as well as most pressing research questions

  6. PUBLIC HEALTH ROLE IN TRANSITION • Manual of current ‘best practices’ in transition at selected clinics under development • Exploring a Transition Office at CDC to oversee transition efforts in spina bifida and other chronic conditions

  7. HEALTH DISPARITIES • Chartbook highlights the following: • Obesity, smoking and physical inactivity • Implications for chronic disease programs in public health • Implications for primary health care and capacity building

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