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Taking Care of Carers 29 November 2013

Taking Care of Carers 29 November 2013. Project contact : ( cuidardequemcuida@castiis.pt ). Calouste Gulbenkian Foundation. Taking Care of Carers Project. Dementia: Major public health and social challenge Affecting 35 million persons worldwide

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Taking Care of Carers 29 November 2013

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  1. TakingCareofCarers 29 November 2013 Project contact: (cuidardequemcuida@castiis.pt)

  2. Calouste Gulbenkian Foundation

  3. Taking Care of CarersProject • Dementia: Major public health and social challenge • Affecting 35 million persons worldwide • Forecast: 70 million in 2030 and 115 million in 2050 • Europe: 7 million • Increasing demand of dedicated healthcare services • Recognition of the decisive role of informal carers and residential care services

  4. Taking Care of CarersProject (2009-2013) • Main Objectives: - Promote specialized answers to support the informal caregivers of patients with Alzheimer's dementia; - Develop integrative social and health services that are sensitive to the needs of informal caregivers;

  5. The geographical extension… • “Entre Douro e Vouga” (EDV) Region 5 municipalities: • Arouca • Santa Maria da Feira • S. João da Madeira • Oliveira de Azeméis • Vale de Cambra Urban and rural context 80 Parishes; 861.4 Km2 total area 283.740 inhabitants

  6. Taking Care of CarersProject (2009-2013) Promoting Institution: Centro de Assistência Social à Terceira Idade e Infância de Sanguêdo (CASTIIS) • Other Partnerships: (25 formal partnerships) • - Municipalities • - HealthCenter • - EDV Region Hospital • - ONG´s • - Others • Profissionals: 43 • - social, health, educationaland legal areas Co-promoting Institutions: Santa Maria da Feira Municipality Research andEducationUnitonAgeing (UNIFAI) Financing: Directorate-General ofHealth Fundação Calouste Gulbenkian

  7. Background • The Region’s Social and Health situation (diagnosis) • Social: Older individuals as a vulnerable group, lacking specific support in several areas. • Health: Lack of mental health services for this population and their caregivers, particularly for dementia and stroke situations • Need of Integrated Community Support

  8. Taking Care of CarersProject (2009-2013) • Line 1_ Psychoeducational intervention • Line 2_ Formal caregivers: training and providing a pool of caregivers • Line 3_ Local Volunteering networks: training and providing a pool of volunteers • Line 4_ Respite Care Services • Line 5_ Discussion • Complementary Line_ Informal Caregivers Profile in EDV Region

  9. Taking Care of CarersProject - Results • Line 1_ Psychoeducationalintervention • Design, scientificvalidationandpublishingpsychoeducationalprogram in AD:“Alzheimer disease manual – PsychoeducationalProgram for/to Informal Caregivers”(May 2013) • 37 groups • 288 informal caregivers • 67 care receivers • GAM (mutual support group): 1 x municipality

  10. Taking Care of CarersProject- Results • Line 2_ Formal caregivers: training and providing a pool of caregivers • 42 formal caregivers in training • Providing a pool of caregivers • Line 3_ Local Volunteering networks: training and providing a pool of volunteers • 12 volunteers in training • Providing a pool of caregivers • Support psychoeducationalintervention groupsand mutual supportgroups

  11. Taking Care of CarersProject - Results • Line 4_ Respite Care Services • Diagnostic of Respite Care Services – residential respite care services: description of services in the EDV Region • Line 5_ Discussion • Site, newsletters • 97 dissemination and promotion actions • 104 seniors • 283 professionals • 435 students

  12. Taking Care of CarersProject (2009-2013) • This project was based in sustainability and continuity of the services: psycheducational groups and mutual support groups still ongoing in each municipality – participation of the partners and stakeholders The success, impact and importance of this project, both in terms of informal caregivers and the community, are the result of the commitment and complementarity actions and resources from the different partners and stakeholders involved. Sta. Maria da Feira

  13. Taking Care of CarersProject - Results • Economic Analysis (preliminary results) • Costs of Dementia Care Services: 4000€ - 12.000€ / per year • Reduction of costs based on the decrease of hospital care demand • 10 – 30% positive impact (less 1.500€ - 4.000€)

  14. Project contacts cuidardequemcuida@castiis.pt www.cuidardequemcuida.com Tlf: 00351 938 343 804

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