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Use of powered mobile arm supports by people with neuromuscular conditions

Use of powered mobile arm supports by people with neuromuscular conditions. Arun Kumar, MSc, BSc; Margaret Frances Phillips, MD. Aim Explore views and experiences of people with neuromuscular conditions who use powered mobile arm supports (PMASs). Relevance

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Use of powered mobile arm supports by people with neuromuscular conditions

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  1. Use of powered mobile arm supports by people with neuromuscular conditions Arun Kumar, MSc, BSc; Margaret Frances Phillips, MD

  2. Aim • Explore views and experiences of people with neuromuscular conditions who use powered mobile arm supports (PMASs). • Relevance • Previous mobile arm support studies did not specifically explore PMASs, user experiences, effects on daily life and participation, and problems with use.

  3. Method • Mixed-methods approach with questionnaires and semistructured interviews. • 13 PMAS users who had neuromuscular conditions and lived within 200 mi of study center (Derby, UK): • Were interviewed at home or by telephone. • Completed ABILHAND and Upper-Limb Functional Index. • Provided details about their diagnosis and experience with PMAS.

  4. Results • Themes that emerged included: • Positive influence of supports on psychological factors and social participation. • Increased range of and independence in several activities, including eating, drinking and exercise. • Variations in funding and time taken for provision. • Initial reactions. • Timing of initial use. • Reasons for nonuse. • Suggestions for future development.

  5. Conclusion • This study: • Emphasizes that PMAS use can greatly improve independence, confidence, and social engagement. • Highlights aspects not previously identified (posture and gastrointestinal benefits) as well as negative and positive aspects of use in schools. • Provides more detailed, comprehensive list of disadvantages, opportunities for reduced care costs, and areas where PMASs may improve quality of life.

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