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Empowering Patients: A Heart Failure Journey

Follow Huw Ll. Jones's journey with heart failure, from feeling isolated and misunderstood to taking control of his health through a personalized management plan. Discover how Huw's experience with Telehealth transformed his life, empowering him to stay informed, active, and independent. This inspiring story emphasizes the importance of support, education, and self-care in managing chronic conditions.

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Empowering Patients: A Heart Failure Journey

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Presentation Transcript

  1. A Patient’s View Huw Ll. Jones

  2. My Illness • I’m Welsh – people tend to think that’s a long term condition! • Heart Failure • Didn’t know what was wrong with me • Wife left – I was always asleep and too boring! • Off sick from work • Isolated – reduce social contact • Only do what you can

  3. What happened • There is always a hero/heroine • One stop shop diagnosis and management plan • Approved for TH • Next day installation and training • Pulse, weight, exercise – through my TV • Insiprational video and questions

  4. What Changed • I felt supported to manage my health • Confident to do things I though I could not • Informed about what was happening to me • No hospitalisation • Independence

  5. Background • I was a Director of Commissioning of a PCT • I commissioned the TH system • I was the first to use the TH system I commissioned • I now work for the Advanced Digital Institute and for Myself

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