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GOVERNANCE OF HUMAN GENETICS: THE MEDIA AND PUBLIC TRUST Brian Salter Mavis Jones

GOVERNANCE OF HUMAN GENETICS: THE MEDIA AND PUBLIC TRUST Brian Salter Mavis Jones. Science and Laika. Overview The Politics of Public Trust Pressures for Change Issues Response Policy Communities and the Territories of Governance Functions of the Media

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GOVERNANCE OF HUMAN GENETICS: THE MEDIA AND PUBLIC TRUST Brian Salter Mavis Jones

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  1. GOVERNANCE OF HUMAN GENETICS: THE MEDIA AND PUBLIC TRUST Brian Salter Mavis Jones

  2. Science and Laika

  3. Overview • The Politics of Public Trust • Pressures for Change • Issues • Response • Policy Communities and the Territories of Governance • Functions of the Media • Project Style

  4. The Politics of Public Trust • Governance, trust and legitimacy • Tension between public interest and industrial need • Votes versus profits

  5. Pressures for Change • Decline in the authority of science • An obsolescent Scientific Advisory [non-] System • Citizens as consumers • Politicisation of science • Loss of state control of the discourse

  6. Issues • Genetic Screening (health) • Genetic Screening (insurance and employment) • Gene Therapy • GM of animals • Reproductive Cloning • Stem cell research • DNA databases and bioinformatics • Intellectual property rights (IPR) • Biological weapons

  7. Response • Change the regulatory structures and their operating principles • Import new ‘experts’ in risk management and bioethics • Self-regulation • Rhetoric and reality

  8. An Embryonic Policy Community Citizens Policy Community Ministers Policy Networks Consumers

  9. The Political Territories of Biotechnology GovernanceRegulation ActivityBiotechnology Standard Monitoring and Intervention Activity Setting Evaluation Research MRC Ethics Committee Peer pressure Wellcome HFEA HFEA Development CSM CSM Ministers ICH BIA BIAEconomic self- interestProduction ACRE ACRE Ministers ACNFP ACNFP Ministers NICE NICE Ministers

  10. Functions of the Media

  11. Political territories of the media: ‘shadow governance’Area of Media ActivityKnowledge Standard Monitoring and InterventionControl Setting Evaluation ResearchDevelopmentProduction

  12. “The central precept of eugenics is the idea that the physical, mental and behavioural qualities of the human race can be improved by selective breeding …This belief was at least partially responsible for the appalling events of the 20th century in Nazi Germany…”- re: implications of genetic breakthroughs, Nuffield Council on Bioethics report, quoted in BBC News, March 19, 2001.

  13. “Yes, the real limit is the conscience of the researcher in a free society of the kind we live in. Of course, when the state establishes the limits, as in Hitler’s Germany, the researcher becomes a tool of the regime, and this gives rise to the monstrous research of people such as Josef Mengele…”- Severino Antinori, quoted in The Times, February 20/2001.

  14. Human cloning plans under fire Caption: “Antinori and Zavos: Aim to go ahead with plans” BBC News online (http://bbc.news.co.uk) Saturday, 10 March, 2001

  15. Project Style • Policy engagement • Applied theory • Inclusivity • Stakeholder dialogue

  16. Conclusions • Pluralistic governance • Incorporating the irrational • Negotiation not control of the political discourse • Beyond regulation and public trust

  17. Science and Phoenix BBC News Online (http://news.bbc.co.uk) Thursday, 26 April, 2001 Foot-and-mouth cull policy relaxed Caption: “Week-old calf Phoenix looks set to be spared”

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