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CCFA Annual Meeting

CCFA Annual Meeting. November 7, 2003 Betsy Myatt. Education Day is a dream come true. Fifth year of current program Old program = 65 attendees New program = grown to over 700 in 2003 50% of attendees are new to CCFA. CCFA Education Day defines keys to success.

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CCFA Annual Meeting

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  1. CCFA Annual Meeting November 7, 2003 Betsy Myatt

  2. Education Day is a dream come true • Fifth year of current program • Old program = 65 attendees • New program = grown to over 700 in 2003 • 50% of attendees are new to CCFA

  3. CCFA Education Day defines keys to success • Connection/partnership of volunteers, staff, and funders • Strategic planning to take program into the future • Communication of the value of CCFA • Development of highest quality programs that fit patient needs

  4. Webcasts far surpassed our dreams • Over 250,000 program views of all programs • Five currently running programs still gaining audiences • Open Dialogue on UC • Nutrition & IBD • Leading Edge Developments • Advocacy & Insurance • CME program – Current and Emerging Therapies

  5. Let’s take a look!

  6. Many thanks to our sponsors • Procter & Gamble Pharmaceuticals • AstraZeneca • Solvay Pharmaceuticals • Centocor • Protein Design Labs

  7. Exciting programs connected us with patients • E-Survey conducted in 2003 • 4,000 patients completed survey in 1 week • 65 questions • More surveys planned for 2004 • Cooking shows met patient needs • Medical overview • Cooking demo and samples • Q&A from audience

  8. CCFA Cooking Shows have been sellouts in eight cities CITIESATTENDANCE • Seattle 130 participants • Cincinnati 100 • New York 92 • Houston 92 • St. Louis 57 • Dallas 150 • San Diego 150 • Detroit 400* 931

  9. CCFA Camps Across America still growing • CCFA Camps Across America – 743 Kids at 14 camps • Kids corner of Web site planned • Updates of children’s brochures • Next Webcast – Children with IBD – coming soon

  10. Here’s a sneak preview..

  11. More planned for patients in 2004 • CCFA Cooking, compliance, and wellness pilot program, including • Live program • Webcast • Chapter modules • Nutrition introduced this week • Medical overview – in review by doctors

  12. More planned for professionals in 2004 • Profession programs • Web-enabled clinical conversations • Web-based case study series with live rollouts • Sponsorship of 2-day symposium in fiscal 2004 with planning for 2005 and beyond • Professional section of CCFA.org designed by CCFA and NSAC Professional Education Committee

  13. We’re making connections with each other through technology... • One consolidated database • Raiser’s Edge constituent relationship management system for 360º view of donors • Best practice processes – consistently used throughout the Foundation

  14. Workgroups are looking at the way we do business • Starting with “AS IS” processes – what we’re doing today • Defining the “TO BE” processes – what we want to become

  15. You must have dreams • CCFA’s Web site = the ultimate resource for patients and professionals in IBD • Consistent and efficient delivery of highest qualtiy programs • Getting in touch with patient needs and meeting those needs

  16. You must have dreams • Sophisticated donor information so that we can secure funding for the ultimate dream– Research that will find a cure for Crohn’s disease an ulcerative colitis

  17. To accomplish great things, we must dream as well as actAnatole France KEEP DREAMING

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