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Ethics of Advertising and Outreach: Liver Transplants in HCV/HIV

Ethics of Advertising and Outreach: Liver Transplants in HCV/HIV. TWO QUESTIONS: 1. How do we both provide information and access to the public and deliver a balanced message about the unknowns and risks associated with this experimental intervention?

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Ethics of Advertising and Outreach: Liver Transplants in HCV/HIV

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  1. Ethics of Advertising and Outreach: Liver Transplants in HCV/HIV TWO QUESTIONS: 1. How do we both provide information and access to the public and deliver a balanced message about the unknowns and risks associated with this experimental intervention? 2. How do we control outreach and referrals so individual centers are not overwhelmed?

  2. Who is NATAP ?? • NATAP (the National AIDS Treatment Advocacy Project) is a non-profit based in NYC • Mission is to provide comprehensive & timely treatment education to affected communities (patients & care providers) globally including P.R. and NYC • HCV & HIV education in English & Spanish to 50+ ASOs, forums, web site <www.natap.org>, radio show, NATAP Reports newsletter, printed materials (fact sheets), HCV and HCV/HIV Handbooks, individual case mgmt, Email Reports • HCV Coinfection education and advocacy has been a major focus

  3. Personal Community Response • I’m not sure it’s ethical or appropriate to exercise control over how many people hear about the program, so the sites don’t get overwhelmed as you say. • I think the community & public need to know about the program; they have a right; I’m not convinced inquiries will be overwhelming anyway • The sites ought to come up with a way to handle inquiries & requests for information • The program offers an opportunity to raise awareness about risks & benefits of transplants, and about the urgent need for donors

  4. Personal Community Response (2) • This is an opportunity to educate & raise awareness of public about organ transplants • And, about issues related to HCV/HIV coinfection treatment, and kidney & HIV health issues • Perhaps local community based organizations can partner with the site: become educated about issues and make themselves available for inquiries: --each site can educate local CBOs --sites can jump-off program by holding community education symposiums for local CBOs and patient community --each site should consider a CAB

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