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Self-determination

Self-determination. The New C ivil R ights M ovement. welcome. Survey time. Self Determination. The History Lesson . The History lesson. Mistreatment. The history lesson. Institutions were believed to be the “ Humane Thing To Do ”. The History Lesson. The history lesson.

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Self-determination

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  1. Self-determination The New Civil Rights Movement

  2. welcome

  3. Survey time

  4. Self Determination

  5. The History Lesson

  6. The History lesson Mistreatment

  7. The history lesson Institutions were believed to be the “Humane Thing To Do”

  8. The History Lesson

  9. The history lesson Things are different today!!

  10. The history lesson It is not just about a “better life”It is about an “equal life”

  11. Building a Case

  12. Building a case

  13. "Is freedom anything else than living how we choose?" Epictetus – Roman Philosopher

  14. Self-Determination Has Limits

  15. A National Gateway to Self‐Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities Self-Determination and People with Intellectual and Developmental Disabilities: What Does The Research Tell Us? Institute for Human Development, University of Missouri Kansas City Kansas University Center on Developmental Disabilities, University of Kansas Center on Human Development, University of Oregon Department of Disability and Human Development, University of Illinois Chicago Westchester Institute for Human Development, New York Medical College http://www.aucd.org/docs/SD-WhatDoWeKnow.pdf

  16. Self-Determination Really Is for EVERYONE

  17. Self- Determination is NOT the same as Self-Directed Supports

  18. Self-Determination is BIGGER than Self-Advocacy

  19. So Who said this was Gonna Be easy?

  20. Building a case Reason #1: Better Lives

  21. Building a case Reason #2: Safer Lives

  22. Personal characteristics that contribute to vulnerability: • Lack of knowledge about rights—unable to identify abuse • Lack of knowledge about how to get help • Limited avenues to obtain help • Learned compliance—taught to be obedient from an early age • Learned helplessness—have lost any sense of control in their own lives • Self-blame, low self esteem—have been come to believe that anything bad is their own fault • Limited communication skills • Easily influenced by pressure, threat, or coercion due to fear of retaliation • Lonely—desperate for a relationship even if it is abusive

  23. Attitudes that contribute to abuse, neglect, exploitation, segregation: • Viewed as powerless for personal reasons previously cited • Viewed as unreliable or untrustworthy reporters; claims of abuse attributed to the disability or diagnosis • Viewed as less than full members of society, less than human • Believed to possess a lesser quality of life due to disability so pointless to try to improve quality of life • Believed to be insensitive to pain, incapable of feeling things as others do, physically and/or emotionally • Over protection—should be kept apart from society for their own safety • Prejudice and ignorance—should be kept apart from society for the good of society

  24. Building a case Reason #3: It’s the right thing to do.

  25. “A right delayed is a right denied.” Dr. Martin Luther King

  26. Building a caseHearing from the Experts http://www.youtube.com/watch?v=JGRjMNBfl58

  27. Barriers

  28. Barriers • Community Attitudes • Lack of School Buy In • Lack of Understanding • Too Much Effort/Stretched Too Thin • Unable to Make Wise Decision • Impractical/Improbable Goals • The Way We Have Always Done It • Lack of funding • Over Protective Families • Guardianship • Self Confidence • Motivation • Communication Challenges • Employer Attitudes • Public Opinion • Too Disabled • Not Enough Time

  29. How do we get there from here

  30. Spreading the word Tools for sharing an understanding of Self-Determination

  31. Spreading the word • Start with ourselves – learn about SD and have our “elevator speech” ready. • Include SD in presentations and trainings • Boards, service clubs, provider agencies, TCM providers, conferences, schools, People First groups, parent groups, churches, places of employment, YMCAs, Scout groups…… • Wherever you go

  32. Websites, emails, social media, flyers, T-shirts, posters, radio-TV-newspapers, etc. Resources: MO-SDA National Gateway to Self-Determination Other states’ self-determination associations Youtube, other video posting sites Empowered self-advocates in your area

  33. Research opportunities

  34. Participatory Action Research (PAR) Typical PAR Steps call for Partners to: Identify an issue or problem together Define what they know about it already Identify what additional information is necessary to understand it Use a variety of means and methods to collect the information Work together to gather and analyze the information Use the information for education, strategic action and/or policy change

  35. Field Initiated Program on the Efficacy of the Self-Determined Career Development Model of Instruction. The UMKC-Institute for Human Development (IHD) and the Kansas University Center on Developmental Disabilities (KUCDD) are partnering on a Field Initiated Program grant in response to an RFP from the National Institute on Disability and Rehabilitation Research (NIDRR) with the goal of testing the Self-Determined Career Development Model (SDCDM) with a statewide sample in Missouri and measuring the gain individuals with DD make in self-identified career development goals as a result of their interaction with the model.

  36. Project Stir

  37. Project STIR • Freedom: to make your own life decisions • Confirmation: that self-advocates lead the way • Authority: to decide how you spend your money • Support: having resources to help you reach your goals • Responsibility: to make good choices and give back to the community

  38. Project STIR Curriculum • Chapter 1. Knowing Yourself • Chapter 2. Communication/Assertiveness • Chapter 3. Problem Solving • Chapter 4. Rules, Rights and Responsibilities • Chapter 5. Self-Advocacy and Self-Determination • Chapter 6. Starting a Self-Advocacy Group • Chapter 7. Being a Part of the Community

  39. Project Stir

  40. MOSDA

  41. MOSDA MOSDA believes individuals with disabilities need to have overall control of their lives, pursue what is important to them and have a meaningful role in the community.

  42. MOSDA • Who can join? ANYONE who wants to be a part of a group who wants to move this civil rights movement forward!!!

  43. MOSDA Check out the website at www.mo-sda.org

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