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ACBCYW HIGH RISK Ad Hoc WORKGROUP REPORT

ACBCYW HIGH RISK Ad Hoc WORKGROUP REPORT. August 2014. WORKGROUP MEMBERS. At the end of this lecture, you will be able to:. Dr. Otis Brawley Susan Brown Dr. Sue Friedman Kelly Hodges Maimah Karmo Ngina Lythcott Dr. Lisa Newman Morrisa Rice Rochelle Shoretz, Chair

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ACBCYW HIGH RISK Ad Hoc WORKGROUP REPORT

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  1. ACBCYW HIGH RISK Ad Hoc WORKGROUP REPORT August 2014

  2. WORKGROUP MEMBERS At the end of this lecture, you will be able to: • Dr. Otis Brawley • Susan Brown • Dr. Sue Friedman • Kelly Hodges • Maimah Karmo • Ngina Lythcott • Dr. Lisa Newman • Morrisa Rice • Rochelle Shoretz, Chair • Dr. Marisa Weiss

  3. WORKGROUP CHARGE At the end of this lecture, you will be able to: To gather initial background information and to advise the Committee regarding: 1. Developing an understanding of what it means to be at “high risk” for breast cancer as it relates to young women. 2. Identifying potential evidence-based messages to be disseminated to this population.

  4. ACTIONS TO DATE • 2010 – 2012 – Delineated Workgroup charge; began research on breast cancer risk in young women related to charge. • 2012 – Submitted report to ACBCYW outlining the research conducted by the Workgroup, relevant findings, items for Committee consideration, and a draft recommendation for the Committee’s consideration. • 2013 – Workgroup recommendations incorporated into letter from ACBCYW to Secretary Kathleen Sebelius of the US Department of Health and Human Services.

  5. ACTIONS TO DATE • Workgroup convened on February 12, 2014 and June 6, 2014 • Workgroup has been discussing suggested directions for the Committee and further research in the area of risk – expanding from exclusive focus on high risk to messaging regarding average risk in young women

  6. WORKGROUP DISCUSSION • Suggested directions for future work • Possible modification of High Risk Ad Hoc Workgroup charge 2. Launch of Know:BRCA campaign

  7. SUGGESTED DIRECTIONS • Develop an understanding of “average risk” and “higher risk”, as compared to “high risk” • Develop messaging to translate “average risk” and “higher risk” to young women • Develop messaging to young women regarding risk reduction based on cancer prevention data

  8. WORKGROUP CHARGE At the end of this lecture, you will be able to: Current Charge: To gather initial background information and to advise the Committee regarding: 1. Developing an understanding of what it means to be at “high risk” for breast cancer as it relates to young women. 2. Identifying potential evidence-based messages to be disseminated to this population.

  9. WORKGROUP CHARGE At the end of this lecture, you will be able to: Draft Modified Charge: To gather initial background information and to advise the Committee regarding: • Developing an understanding of what it means to be at “average risk” and “above average” riskas it relates to young women • Identifying potential evidence-informed messages to be disseminated to this population regarding breast cancer risk • Identifying potential evidence-based actions young women can take to reduce their risk of breast cancer

  10. KNOW:BRCA Recommend full Committee discussion about how we can move this campaign forward: • Leveraging media attention in light of Breast Cancer Awareness Month and Ovarian Cancer Awareness Month • Developing talking points for Committee members contacted by the media in the upcoming months

  11. NEXT STEPS • Feedback on “Suggested Directions” and avoiding overlap of work being done by the General Population Ad Hoc Workgroup • Discussion: Modification of High Risk Ad Hoc Workgroup charge 2. Discussion: Know:BRCA campaign

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