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National Fibromyalgia Awareness Survey

This executive summary highlights the findings of a national survey on knowledge, perceptions, and impact of fibromyalgia among American adults. The survey provides valuable insights into public awareness and understanding of the condition.

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National Fibromyalgia Awareness Survey

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  1. National Fibromyalgia Awareness Survey Executive Summary of Results June 2007 Prepared by Schulman, Ronca & Bucuvalas, Inc.

  2. Methods • Pretest conducted with 27 respondents on 5/16/2007 • National RDD telephone survey among American adults aged 18 or older • N=1,606 • Conducted from 5/22/2007 to 6/4/2007 • Final results weighted by AGE and GENDER

  3. Knowledge of Personal Health andHealth Conditions Q1. How knowledgeable do you consider yourself about your health? N=1,606Q2. How knowledgeable do you consider yourself about health-related conditions? N=1,606

  4. Frequency of Doctor Visit Q3. On average, how often do you visit your primary care physician? N=1,606

  5. Aware of Fibromyalgia Q4a. Have you ever heard of a condition called fibromyalgia? Q4b Let me just be sure. You have never heard of a condition called fibromyalgia? N=1,606

  6. Knowledge of Fibromyalgia Q5. How knowledgeable do you consider yourself about fibromyalgia? BASE: Aware of Fibromyalgia, N=917

  7. Knowledge of Fibromyalgia BYExposure to Fibromyalgia Q5. How knowledgeable do you consider yourself about fibromyalgia?BASE: Aware of Fibromyalgia, N=917

  8. Degree of Knowledge of Fibromyalgia Q4a/Q4b. Have you ever heard of a condition called fibromyalgia?Q5. How knowledgeable do you consider yourself about fibromyalgia? N=1,606

  9. Knowledge of Fibromyalgia BYKnowledge of Health Conditions Q2. How knowledgeable do you consider yourself about health-related conditions? Q5. How knowledgeable do you consider yourself about fibromyalgia? N=1,606

  10. What Type of Condition is Fibromyalgia Q6. To the best of your knowledge, what kind of condition would you characterize fibromyalgia as? BASE: Knowledgeable about Fibromyalgia, N=617

  11. Common Perceived Symptoms of Fibromyalgia Q7a. To the best of your knowledge, what are the most common symptoms of fibromyalgia?Q7b. Which, if any, of the following are also common symptoms of fibromyalgia?BASE: Knowledgeable about Fibromyalgia,N=617

  12. Volunteered Symptoms of Fibromyalgia BY Exposure to Fibromyalgia Q7a. To the best of your knowledge, what are the most common symptoms of fibromyalgia? BASE: Aware of Fibromyalgia, N=917

  13. Likely Age of Onset of Fibromyalgia Q8. Are people more likely to develop symptoms of fibromyalgia when they are . . . ? BASE: Knowledgeable about Fibromyalgia, N=617

  14. Overall Impact of Fibromyalgia Q9. To the best of your knowledge, how much impact does fibromyalgia have on a person living with the condition? BASE: Knowledgeable about Fibromyalgia, N=617

  15. Impact of Fibromyalgia on Ability (1)% Very Strong/Strong Q10. For those living with fibromyalgia, what impact does the condition have on their . . .? BASE: Knowledgeable about Fibromyalgia, N=617

  16. Impact of Fibromyalgia on Ability (2)% Very Strong/Strong Q10. For those living with fibromyalgia, what impact does the condition have on their . . .? BASE: Knowledgeable about Fibromyalgia, N=617

  17. Impact of Fibromyalgia on Personal Life% Very Strong/Strong Q10. For those living with fibromyalgia, what impact does the condition have on their . . .? BASE: Knowledgeable about Fibromyalgia, N=617

  18. Life Impacts of Fibromyalgia Based on your understanding of fibromyalgia, rank in order – from the most impacted (1) to the least impacted (5) the areas of your patient’s lives you perceive the condition affects.(% ranking as #1 most impacted shown for each area.) Ranked by Rheumatologists.Taken from a doctors survey conducted by Penn, Schoen & Berland Associates, Inc.

  19. Attitudes about Persons with Fibromyalgia% Strongly Agree/Agree Q11. Based on what you know or have heard, please tell me whether you strongly agree, agree, disagree, or strongly disagree with the following statements. BASE: Knowledgeable about Fibromyalgia, N=617

  20. Attitudes about Diagnosis and Treatment of Fibromyalgia: % Strongly Agree/Agree Q11. Based on what you know or have heard, please tell me whether you strongly agree, agree, disagree, or strongly disagree with the following statements. BASE: Knowledgeable about Fibromyalgia, N=617

  21. Attitudes of Fibromyalgia BYExposure to Fibromyalgia Q11. Based on what you know or have heard, please tell me whether you strongly agree, agree, disagree, or strongly disagree with the following statements. BASE: Knowledgeable about Fibromyalgia, N=617

  22. Can Recognize a Person with Fibromyalgia% Very Likely/Likely Q12. How likely would you be to identify a person with fibromyalgia on the street? BASE: Knowledgeable about Fibromyalgia, N=617

  23. Can Recognize a Person with Fibromyalgia% Unlikely/Not Likely at All Q12. How likely would you be to identify a person with fibromyalgia on the street? BASE: Knowledgeable about Fibromyalgia, N=617

  24. Visible Signs of Fibromyalgia Q12a. How would you identify a person with fibromyalgia? Would they . . . BASE: Likely to spot a person with Fibromyalgia, N=43

  25. Ever Diagnosed with Fibromyalgia Q13. Have you ever been diagnosed with fibromyalgia by a healthcare professional? N=1,606

  26. Time to Diagnosis with Fibromyalgia Q13b. How long did it take you to get a diagnosis of fibromyalgia after you first saw a healthcare professional about your symptoms? BASE: Diagnosed with Fibromyalgia, N=53

  27. Number of Doctors Seen Before Being Diagnosed with Fibromyalgia Average: 4 Q13c. How many doctors did you see about your symptoms before you were diagnosed with fibromyalgia? BASE: Diagnosed with Fibromyalgia, N=53

  28. Degree of Pain Associated with Fibromyalgia Average: 3.52 Q14. On a scale of 1 to 5, where 1 means barely noticeable and 5 means completely incapacitating, how would you rate the pain associated with your fibromyalgia. . .? BASE: Diagnosed with Fibromyalgia, N=53

  29. Overall Impact of Fibromyalgia: Patients Q15. How much does fibromyalgia impact you? BASE: Diagnosed with Fibromyalgia, N=53

  30. Being Treated for Fibromyalgia Q16. Are you actively being treated by a healthcare professional? BASE: Diagnosed with Fibromyalgia, N=53

  31. Currently Treated for Fibromyalgia BYAttitude about Treatment Q16. Are you actively being treated by a healthcare professional? Q11. Based on what you know or have heard, please tell me whether you strongly agree, agree, disagree, or strongly disagree with the following statement: Nothing can be done to manage fibromyalgia. BASE: Diagnosed with Fibromyalgia, N=53

  32. Age of Persons with Fibromyalgia Average Age: 52 D2. What is your age? BASE: Persons with Fibromyalgia, N=53

  33. What Type of Condition is Fibromyalgia: Patients Q6. To the best of your knowledge, what kind of condition would you characterize fibromyalgia as? BASE: Persons with Fibromyalgia, N=53

  34. Knows Someone with Fibromyalgia D1. Do you know anyone with fibromyalgia? BASE: Knowledgeable about Fibromyalgia, N=617

  35. Degree of Exposure to Fibromyalgia Q4a/Q4b. Have you ever heard of a condition called fibromyalgia? Q5. How knowledgeable do you consider yourself about fibromyalgia? D1. Do you know anyone with fibromyalgia? Q13. Have you been diagnosed with fibromyalgia by a healthcare professional? N=1,606

  36. Awareness/Knowledge of Fibromyalgia BY Region of US Q4a/Q4b. Have you ever heard of a condition called fibromyalgia? Q5. How knowledgeable do you consider yourself about fibromyalgia? N=1,606

  37. Race of Respondent D3a. Do you consider yourself to be of Hispanic or Latino origin? D3b. What BEST describes your racial or ethnic background? N=1,606

  38. Employment Status of Respondent D4. What BEST describes your current employment situation? N=1,606

  39. Education Level of Respondent D5. What is the highest schooling you have completed? N=1,606

  40. Household Income Level of Respondent D6. What best describes your household income from all sources before taxes? N=1,606

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