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  1. ANNUAL GENERAL MEETING 1 September 2013

  2. AGENDA (1/2) Welcome by the President ad interim Association activities & progress report Approval of 2012 Financial report Association objectives 2013/2014 EC election results  Motions Volunteers acknowledgement Lifetime Member

  3. AGENDA (2/2) EDTNA/ERCA Manuscript and ScholarshipAward EDTNA/ERCA Accreditation & Endorsement of Education programmes Future Conference Any other business Date and venue for next AGM Close of the meeting

  4. Association activities & Progressreport Maria Saraiva EDTNA/ERCA President ad Interim

  5. Did weachieve our objectives in2012/2013?

  6. Achieved objectives 2012/2013 Consolidation of project developed in partnership with European National Associations • The joint EDTNA/ERCA project with the European Renal Care National Associations (ENRCA) “Quality Improvement Implementation in Renal Units across Europe” was successfully finalized • Project Results to be presented at the Malmö Conference, S11 EDTNA/ERCA session, Sunday, 1 September at 12:45, Artisten Hall

  7. Achieved objectives 2012/2013 Implement environmental approach throughout the Association • EDTNA/ERCA continues to raise awareness of environmental aspects in Renal Care: Green Innovation Award results will be presented at the Malmö Conference • Environmental Guidelines are available in 8 languages • The Association continues with electronic communication to EDTNA/ERCA members, volunteers, online membership application successfully implemented • EDTNA/ERCA preferably collaborates with service providers and suppliers having ISO 14001 certification

  8. Achieved objectives 2012/2013 ARBOR RESEARCH & EDTNA/ERCA Collaborating in DOPPS 5 • EDTNA/ERCA CRAs will continue providing for the monitoring and data collection process of DOPPS in Europe for next 5 years • New country member Turkey has joined DOPPS • EDTNA/ERCA cooperates in the move from DOPPS 5 to DOPPSLite • EDTNA/ERCA cooperates in “DOPPS” on Peritoneal Dialysis

  9. Achieved objectives 2012/2013 To collaborate at European and world wide level in education and research to improve quality of Renal Care • JORC Supplement on Home Therapies (February 2013) • JORC Supplement on Quality Management, to be complemented with a workshop at the Malmö Conference S 14 Quality improvement Workshop, Sunday, 1 September at 14:00, Artisten Hall • Translation of handbooks into various languages • ICN Accreditation (ICNEC) • University and Industry courses Accreditation/Endorsement

  10. Achieved objectives 2012/2013 To implement the regular use of Social Media in order to strengthen EDTNA/ERCA by increasing communication and visibility worldwide • EDTNA/ERCA extended Twitter services are in place • The Association is evaluating presence on LinkedIn and Facebook • Digital media education tools are being investigated • Tailor made Local Conference Website

  11. Achieved objectives 2012/2013 Quality Management System approach • Continued harmonization and re-definition of Standard Operating Procedures (SOP) and Operating Procedures (OP) • Implemented new EC accountability grid taking into consideration Quality Management System requirements, e.g. process orientated approach • Implemented Brand Ambassador Programme - new trainingconcept for KMs/LMs

  12. Collaboration with industry Next steps in Go Green in Dialysis New joint EDTNA/ERCA & Fresenius Medical Care Initiative • Green Innovation Award • Recognition to innovative ideas, best practices and procedures, which contribute to the promotion and development in the field of environmental protection in dialysis S 26 - Environmental management in renal care Concert Hall, Monday, 2 September 2013, 14:00

  13. Collaboration with industry Guidelines on Vascular Access Cannulation and Care Joint EDTNA/ERCA & Fresenius Medical Care project to achieve enhanced multidisciplinary renal team practice in HD and produce VA guidelines Jean Pierre van Waeleghem Jitka Pancířová Maria Teresa Parisotto

  14. Collaboration with industry Guidelines on Vascular Access Cannulation and Care Joint EDTNA/ERCA & Fresenius Medical Care project team

  15. Collaboration with industry Survey on renal nurses and dieticians Joint EDTNA/ERCA & Shire Pharmaceuticals project • Renal care professionals responsible for providing dietary advice to patients in renal units in the Netherlands, Spain, Sweden and the UK completed the questionnaire (48 renal dietitians, 35 renal nurses and 1 renal physician from hospitals and outpatient clinics) • Questions focused on dietary protein intake recommendations,trends in phosphate consumption and awareness and adherence to binder therapy

  16. Collaboration with industry A Guide to Implementing Renal Best PracticeinHaemodialysis Joint EDTNA/ERCA & Gambro Project Project Team Members

  17. Collaboration with industry A Guide to Implementing Renal Best PracticeinHaemodialysis Joint EDTNA/ERCA & Gambro Project Project Co-ordinators on behalf of EDTNA/ERCA Jitka Pancířová, Anki Davidson

  18. Collaboration with industry Secondary Hyperparathyroidism (SHPT) survey Joint EDTNA/ERCA & Amgen project • Project aims to help understand the nephrology nurses professional educational needs around the management of Secondary Hyperparathyroidism (SHPT) • The results will help to provide recommendations on how to improve the focus and quality of education given to nurses around this subject Liana Poulia, the Project co-ordinator

  19. Collaboration with industry Multilingual Patient Education Documents (for renal nurses) Joint EDTNA/ERCA & B. Braun Avitum project aiming • To establish the difficulties faced by renal nurses in caring for culturally diverse CKD patients anddevelop multilingual patient education documents as a support tool for renal nurses Tai Mooi Ho Wong, a Project co-ordinator on behalf of EDTNA/ERCA Simone Klein, a Project co-ordinator on behalf of B. Braun Avitum

  20. Collaboration with industry These documents will be translated into several languages and will be available on both websites Multilingual Patient Education Support Tool for Renal Nurses A total of 10 documents on CKD Stages 1-3 were produced in Englishas first step: • About Your Kidneys • High Blood Pressure (BP) • Home BP Monitoring • Diabetes Mellitus • Healthy Lifestyle • Physical Exercise • Stop Smoking • Low-salt Diet • Common Medicines • Reactions Following Following Diagnosis

  21. Collaboration with EKHA Continuous partnership withEuropean Kidney Health Alliance(EKHA) Jitka Pancířová, EDTNA/ERCA Executive Director & Professor Norbert Lameire, EKHA Chairman

  22. Collaboration with EKHA Continuous partnership withEuropean Kidney Health Alliance(EKHA)

  23. Publications 2013 • JournalofRenal Care • 4 Regular Editions + 2 Supplements on: • Home Therapies • Quality Improvements • Increasing online usage. Over 50,000 article accesses in 2012 • Included in Wiley Blackwell collections. Over 1600 libraries around the world have access to the JoRC • Strategy for next year: Supplement on Transplantation

  24. Publications 2013 • Newsletter • Available in the following languages thanks to Volunteers translations: • Croatian • Dutch • English • French • German • Greek • Hebrew • Italian • Distributed hard copies in: English, German, Greek, Italian and Spanish • All PDFs in the open side of EDTNA/ERCA web. Lithuanian Polish Portuguese Serbian Spanish Slovenian Turkish

  25. Publications 2013 Books Acute Kidney Injury-A Guide to Clinical Practice Translation from English into Spanish Project leader: Spanish Key Member: Carlota Hidalgo Hard copies in Spanish thanks to FME Renal Transplantation-A Guide to Clinical Practice Translation from English to Italianby EDTNA/ERCA Italian Branch Peritoneal Dialysis – A Guide to Clinical Practice Translation from English to Italian by EDTNA/ERCA Italian Branch

  26. Publications 2013 Books Environmental Guidelines for Dialysis– A Practical Guide to Reduce the Environmental Burden of Dialysis • Translation from English to Turkish by: Turkish Nephrology Nursing Association • Translation from English to Portuguese by: Maria Saraiva and Filipe Cristovao, Escola Superior de Enfermagem de Lisboa, Lisboa, Portugal • This book is now available in 8 languages: Czech, English, French, Italian, Portuguese, Russian, Spanish and Turkish.

  27. Other Publications achieved in 2013 ONLINE educational resource for Health Care Professionals (HCP) – Electronic Library • Project Leaders: Karen Jenkins (UK) Lesley Bennett (UK) An ongoing project to create educational materials at three distinct levels: Novice, Advanced and Expert. Every level will be identified by a color. The first ones: • Expert Level Iron Deficiency Anaemia Renal Bone Disease • Advanced Level Iron Deficiency Anaemia Immunosuppression in Transplantation

  28. A Publications under the following Consultants accountability to be launched soon: • Book on Immunosuppression Jose Luis Cobo Sánchez ( TX Consultant) • Translation from English to Greek: Nutrition for Adults with CKD Liana Poulia - Nutrition Consultant (Greece) • Book on E-health Aase Riemann ( Peritoneal Dialysis Consultant)

  29. Cooperation with other Associations • Croatian Nurses Association • HENNA • TNNA • Italian Branch • Soben QualityImprovementImplementation in RenalUnitsacrossEurope - A survey of National Presidents of Renal Health Care Associations“ AnEuropean Network of Renal Care Association (ENRCA) project 10 National and International Associationsparticipated in thisproject: • Israeli NNA • APEDT • EFHSS • FS Nephro • CYNMA S11 ENRCA Session, 12:45, 1 September 2013, Artistenhall

  30. EDTNA/ERCA & Social Media New ways of communication with EDTNA/ERCA establishedusingSocialMedia SinceJanuary 2012 EDTNA/ERCA is on TWITTER Dailytweetingaboutthelatestnews on EDTNA/ERCA and renal care Since 2013 EDTNA/ERCA isinvestigatingthepossibilities ofusingFacebook and LinkedIn LinkedInprofilesofExecutiveCommitteememberscreated

  31. Presentation and Approval of Financial Report 2012 Edita Noruisiene EDTNA/ERCA Treasurer ad Interim

  32. Financial Conclusions 2012 • In the financial year 2012, the Association continued with the consolidation of the financial status. • Services to members, delegates and partners and educational offerings to Renal field were maintained at a good level. • The Association continued to work on various projects and organised a successful 41st International Conference. • The Association published a Scientific Journal, a Newsletter and new pocket books for education of Renal healthcare workers.

  33. Financial Conclusions 2012 • The basic reserve required was maintained. • The Capital increased to 642.807 Swiss Francs (CHF). • The flexible assets are found in bank account and short term investment accounts. • Transfer and settlement accounts show fully explained and consolidated balances. • Accrued expenses and income are at normal levels, transactions accounted are fully transparent and explainable.

  34. Financial Conclusions 2012 • The result of the year 2012 shows a surplus of 176.192 CHF. • The main reason for this result is the cost conscious working in all areas, a continued interest in the International Conference by delegates and excellent support from industry partners. • The good results compensate a reduction in membership receipts, are positively influenced by lower conference expenses than forecasted and income from publications although receipts from advertisements for print publications are less successful then in past years.

  35. Balance Sheet 2012 vs. 2011

  36. Balance Sheet 2012 vs. 2011

  37. Operating statement 2012 vs. 2011

  38. Financial Audit 2012 • The official Revision and Audit of the Finance Accounts 2012 took place on 16th March 2013 in the premises of Alpina Treuhand, Seestrasse 91, 6052 Hergiswil, Switzerland • All documents were available at the revision. The balances of Bank Accounts were found to be equal to assets booked. • All transactions are correctly booked and transparent. • Short term finance investments were balanced. The investment strategy ensures best security and flexibility regarding liquidity required.

  39. Financial Audit 2012 • I quote from the Report of the Auditors: “In our opinion the accounting records and financial statement comply with Swiss Law and the articles of the Association. We recommend that the financial statements submitted to you are approved”.

  40. Future • The process to safeguard the financial independence and viability of the Association remains a challenge for the near future, in a period of world-wide economical instability. • Cost containment, safe investment of reserves and support to the organisation of a successful conference are the main goals for the Finance Team also in 2013 and onwards. • EDTNA/ERCA strives to maintain the level of services on a high level, is investing in improving services and support to volunteers and will continue to support innovation in many aspects to support Renal care workers.

  41. With great sadness EDTNA/ERCA faced the loss of our experienced, skilled and highly committed Treasurer, our dear colleague and friend Alessandra Zampieron. We owe her our deep respect. She will stay in our memories.

  42. I would like to thank: All my colleagues in the Executive Committee and in particular Mr. Alois Gorke, the Finance Co-ordinator, and other professional providersfor their support during the year 2012.

  43. Approval of the Financial Report 2012 by the AGM

  44. ExecutiveCommittee electionsresults Maria Saraiva EDTNA/ERCA President ad Interim

  45. Executive Committee elections results Executive Committee elections 2013 with effect as per 1 September 2013 • A total of 149 ballots counted, 0 of which were invalid • 1154 members with voting right (June 2013) • A quorum for a postal ballot shall be 7% of the voting Members • = > minimum81votes

  46. EC elections results Executive Committee elections 2013 with effect as per 1 September 2013 Candidates: Yes Votes           NoVotes                   Abstain Marianna Eleftheroudi 142 3 4 Elected as Executive Committee member as per 1 September 2013 Susan Rogers142                  1                                6 Elected as EDTNA/ERCA Secretary as per 1 September 2013 Maria Saraiva1431                                5 Ratified as EDTNA/ERCA President, with effect as per 1 September 2012 Edita Nourisiene13748 Ratified as EDTNA/ERCA Treasurer, with effect as per 1 September 2012 Elections were closed and are declared valid.

  47. Objectives 2013/2014Maria SaraivaEDTNA/ERCAPresident

  48. EC responsibilities 2013/2014

  49. Objectives 2013/2014 Promote Renal Care through education and continuous professional development • Strengthen the role of the renal multidisciplinary team to enable quality of care for the renal patient • by preparing educational materials which will help these professionals in the education of patients and families • Increase awareness to the role of renal multidisciplinary care team taking care for renal patients, in different European countries • by being involved in projects at national level and bringing EDTNA/ERCA knowledge and expertise

  50. Objectives 2013/2014 Development of educational material for nurses in order to enable them to answer the needs of patients from different ethnicities and cultures • Identify and develop educational materials for renalcare teams helping them educate, advise and guide patients from different ethnic origins • by developing materials in different languages suitable for educate and guide people from all origins and ethnicities • EDTNA/ERCA organizes educational meetings on local and international level to spread educational materials,knowledgeand expertise • by having EDTNA/ERCA Ambassadors in various countries worldwide leading the voice of the renal teams