Talking to Lung cancer patients about radon Angela Tin Radon National Meeting September 2016
background How do we respond to callers for health related questions on cancer? How can everyone do this on a nation-wide basis? How can we find other radon advocates?
Who responds to Radon calls: • USEPA / State Agencies (Hotlines) • NGO Organizations (CanSAR and CR3) • Universities • Professional Organizations (AARST) • Laboratories • Measurement /Mitigation Professionals ALL OF US IN THIS ROOM
What kind of questions: • Measurement and testing • Radon levels of concern • Mitigation principles • Radon science & physics • Radon risk and epidemiology • Measurement/mitigation professionals I HAVE BEEN DIAGNOSED WITH LUNG CANCER
I HAVE BEEN DIAGNOSED WITH LUNG CANCER
One reason we care is Celeste • Celeste E. Better Fund established in memory of our national office colleague who died of lung cancer in 2010 • Celeste never smoked • Succumbed at 41, only months after seeing her doctor for a persistent cough
Lung Cancer Image Lymph nodes Healthy Lung Lung cancer is cancer that STARTS in the lung
Incidence: By State Lung cancer rates 26.7 97.3
Lung cancer kills too many people In 2010, 158,318 people died from lung cancer • 87,740 men • 70,578 women In a room of 100 people 6 will develop lung cancer, and 5 will die from it
Lung cancer strikes some harder Source: National Cancer Institute. SEER Cancer Statistics Review, 1975-2008.
Lung Cancer Symptoms • Chronic cough • Hoarseness • Constant chest pain • Shortness of breath, or wheezing • Frequent lung infections • Coughing up blood • Loss of weight • Loss of appetite • Headaches • Bone pain or fractures • Blood clots Many people do not develop symptoms until the lung cancer has spread and is in the later stages. This make lung cancer difficult to diagnose and treat early.
Our lung cancer work today Health Education & Awareness Patient Programs • Prevention • Don’t start or quit smoking • Radon Testing and Mitigation • Early Detection • High risk screening promotions • New methods • Awareness and health education • Guidelines for patients • Treatment • Get tumors tested • Personalized medicine • Clinical trials • Affordable care • Guidelines Advocacy Research • Cure • Research • Lobby for more funding
Patient programs Lung cancer Hotline • Lung Cancer Basics • Treatment Options • Clinical Trials • Coping with Side Effects • Support for Caregivers • Support - lung cancer patients • Treatment options • Referral for radon questions • And many more… Please use these Rack Cards
MERGING NEEDS BETWEEN Radon AND American lung association’s LUNG CANCER HELPLINE • Call the Lung Cancer HelpLine at 1-844-ALA-LUNG • Email a question to HelpLineInfo@Lung.org • Visit http://bit.ly/helplinechat to chat online • TTY for hearing impaired at 1-800-501-1068 • Visit MyLungCancerSupport.org
Typical helpline conversation • Provide consistent, appropriate and responsible answers about lung cancer on a nation-wide basis • Answer or direct questions about radon to others • Create a team of radon advocates
Angela Tin Vice President Environmental Health American Lung Association of the Upper Midwest Angela.Tin@Lung.org 217.787.5864 * www.Healthhouse.org