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Access to SRHR and HIV interventions for Persons With Disabilities by Jonathan Yusofu Banda at SADC PF 27 &28 October,2015 Johannesburg. Definition of Disability. Interactional concept not absolute state
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Access to SRHR and HIV interventionsfor Persons With Disabilitiesby Jonathan Yusofu Banda at SADC PF 27 &28 October,2015 Johannesburg
Definition of Disability • Interactional concept not absolute state • Impairments interaction with barriers cause activity limitations and participation restriction on equal basis with others (ICRPD, ICF, Social Model) • Existentialism- alone in meaningless world. Nature determines action • Social construct like Gender. (Inequality and Struggles-access to resources)
Prevalence of Disability • ~10 % of world’s population • Differing definitions and methodologies=varying statistics • Washington Group 6 – standardized set of questions allowing for cross country comparison • HIV/AIDS in disability-challenge of data sources-antenatal clinics and population surveys(exclusion)
CONCEPTUALISING FRAMEWORKS-SRHR IN DISABILITY COPD 1994 SOCIAL MODEL/ICF RIGHTS BASED APPROACH GOVERNANCE ICRPD • Focus on SRHR of popn • .6.30- ELIMINATION OF DISCRIMINATION VS PWDS in SRHR • H/ever, Maputo PoA blind to disability • HUMAN DIGNITY • AUTONOMY • SELF DETERMINATION • EQUALITY • IMPAIRMENTS VS ACTIVITY LIMITS& PARTCIPATION RESTRICTION • INTERLINKAGE OF RIGHTS • RIGHTS HOLDERS • DUTY BEARERS ARTICLE 9-ACCESS • ARTICLE 16-VIOLENCE PROTECTION • ARTICLE 22-PRIVACY • ARTICLE 23-Discrimination elimination (family/marriage/SRHR • Article 25-health • Article 26- habilitation and Rehab • EQUALITY • ACCESS • SOCIAL SYSTEMS- • (health and education) • SOCIAL CHANGE
SRHR and HIV/AIDS SERVICES Complication RIGHT Complication RIGHT Complication RIGHT NEED FOR CONSTANT ATTENDANT/PERSONAL ASSISTANT /INTERPRETER CONFIDENTIALITY/PRIVACY FORCED STERILISATION/ABORTION OF PWDs-MENTAL IMPAIRMENTS INTERGRITY LACK OF BRAILLED LABELS ON CONDOMS PROTECTION FROM EPIDEMIC DISEASE
SRHR and HIV/AIDS SERVICES Complication RIGHT Complication RIGHT Complication RIGHT • INACCESSIBILITY • SOCIO-CULTURAL FACTORS • ATTITUDINAL ACCESS TO SRH SERVICES/HIV RELATED SERVICES MISCONCEPTIONS OF INABILITY RIGHT TO MARRY AND FOUND A FAMILY -VE DRUG INTERACTIONS BETWEEN ART AND MENTAL HEALTH MEDICATION HIV/AIDS TREATMENT
HIV/AIDS AND DISABILITY • Bidirectional relationship- STRUCTURAL RISK FACTORS-Poverty; Illiteracy; Access to Health and Education; lack of Choice/Sexual Violence/Low assertiveness/Alcohol &Substance abuse(HI)/Adherence SOCIO-CULTURAL RISK FACTORS Assumptions of Asexuality/Sexual inactivity/Double Discrimination GOVERNANCE MECHANISMS Prejudice/ Marginalization /Exclusion of PWDs in HIV/AIDS Policy and program design/Ethical concerns about research HIV/AIDS
Children with Disabilities • ~15-20 % of children with disabilities experience physical and sexual violence • CWDs out of school excluding them from vital SRH information taught in schools • Lack of understanding of their bodies- cant set limits of physical contact • Sexual violence by caregivers/guardians • Exposed to abuse through multiple caregiving/ taught trust and dependence
Men with Disabilities • Greater risk of sexual abuse than men without disabilities. “Urban Risk” • Under-reporting of boys/men with disabilities who are abused (Save the Children 2011) • Deterrents to Reporting-Illegality and taboos • Cultural/Religious belief-affront to masculinity
Women with Disabilities Low literacy levels vs. access to family planning(arrows) Fewer socio-economic options in sour relationship Poverty Forced Marriage/Sterilization Virgin rape(albinism) MisconceptionHIV cure/Prophylaxis Systemic and Physical Barriers to Reporting SGBV Gender discrimination Gender& Disability as social constructs Ante-Natal Care Lack of access puts them at risk of delivering CWDs
INTERLOCKING BARRIERS Taboos/Gender Roles/Religious/ Socio-Cultural Structural Inaccessibility/limited awareness/Capacity constraints Limited research and representation to inform policy makers Legal and Policy Framework Deprivation/Attitudinal/ Stigma/Discrimination/Norms/Charity model/ handicap Low budgetary prioritisation for Reasonable Accommodation and Accessibility Political
SWOT Analysis Strengths Weaknesses • Political Will • Acts on Disability • Representation • Lack of Stats • Limited Understanding Disability Inclusion Opportunities Threats • ICRPD ratification • SDG 3-SRH services • SDG 17 • Rights Based Approaches • Inequality • Resource & Capacity Constraints • Climate Change
Remediation Strategies Legal Reforms Participation Budgets/ Disability Rights Training/ Inter law vs. Domestic/Policy Development Mainstreaming Disability Inclusion Stigma/Prejudice/Cultural Sensitivities/ Alternate formats/Rights awareness(magic bullet) Evidence Base/Indicators of Success Research Awareness Raising
TOWARDS INCLUSIVE DEVELOPMENT DisabilityInclusion Twin Track approach-Mainstreaming (sustainable) and Disability Specific PWDs Parliament Parliament Media Research(Indicators/M&E) Legal& Legislative Reform Awareness Raising Participation GOVERNANCE MECHANISMS(Capacity Building& Systems Strengthening/Accountability/Technology)
Disability Inclusion Management RESEARCH AWARENESS RAISING PARTICIPATION LEGAL AND LEGISLATIVE REFORM GOVERNANCE MECHANISMS YEARS Kick-Off Milestone 2 Milestone 4 Milestone 1 Milestone 3
Disability Empowerment Employment Education Healthcare