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As the population of older people living with HIV grows, urgent action is needed to adapt services to their unique needs. This session highlights the voices of older individuals who feel unprepared and neglected, emphasizing the importance of involving them in planning and representation. Key recommendations include enhancing data collection regarding those aged 50+, integrating care for comorbidities, and fostering peer support. By listening and collaborating with older adults, we can create effective policies that cater to this underserved demographic. Visit www.tht.org.uk/50plus for more information.
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Planning for a Futurepolicy & advocacy considerations for an ageing population of people with HIVLisa Power, Terrence Higgins Trust, UK
“Now we are going into the dark and nobody is prepared, I am telling you, nobody knows what we are going to be doing.…”“Services are geared towards younger people with HIV. When I look at websites it shows … the illness in a manner that’s unrealistic…”
Start listening • Do your own in-country social research • Involve a range of older people with HIV throughout it • Involve older people in service planning & representation • Pay attention to differences • with other ages with HIV • within this population • Talk with others serving older people; they have expertise
Policy Recommendations • Get the data: UNAIDS & WHO should include 50+ in their reporting • Get training: older people’s services must include HIV (and vice versa) • Integrate care for common comorbidities • Develop peer support and leadership • Listen to older people!
Thanks to: • ACRIA and other partners today • MBARC and community researchers • 50 Plus Community Advisory Committee • Joseph Rowntree Foundation • All the people who told us what they were, what they wanted and what they feared 50Plus Project – www.tht.org.uk/50plus