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Project

Project. PROMETHEUS Software for Stem Cells Donor Registries. Donor Search in EMDIS. Mechelen, Belgium February 2013. Content. BMDW Single virtual registry EMDIS Preliminary search Activation of patient in EMDIS Emdis search report FAQ. BMDW. Registries send their Donor data

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Project

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  1. Project PROMETHEUS Software for Stem Cells Donor Registries Donor Search in EMDIS Mechelen, BelgiumFebruary 2013

  2. Content • BMDW • Single virtual registry • EMDIS Preliminary search • Activation of patient in EMDIS • Emdis search report • FAQ

  3. BMDW • Registries send their Donor data • Data is published once a a month

  4. Preliminary Request Patient data Patient data FGM ZKRD Patient data TC NMDP Patient data Patient data Patient data Anthony Nolan BE

  5. Search Results Search Result Search Result FGM ZKRD Search Result TC NMDP Search Result Search Result Search Result Anthony Nolan BE

  6. ACTivate Patient Patient->ACT Patient->ACT FGM ZKRD Activate Patient TC NMDP Patient->ACT Patient->ACT Patient->ACT Anthony Nolan BE

  7. Search Result Updates New better donor FGM ZKRD Search ResultUpdates TC NMDP Donor StatusChange Complimentarytyping Anthony Nolan BE

  8. Stop Patient Patient->STP Patient->STP FGM ZKRD Stop Patient Case TC NMDP Patient->STP Patient->STP Patient->STP Anthony Nolan BE

  9. EMDIS Search for patients • Even small registry receives thousands of patients every year • Preliminary search – every hour • Active search – every night • Long run active search – every week • Patient is active for more than 100 days • Up to 24 hours to get preliminary search results from other registries

  10. Preliminary Request • EMDIS Tools of Patient • EMDIS as one virtual registry = state of patient in all registries is the same!!! • Matching preferences

  11. EMDIS tools for Patients

  12. Change patient status • Status may be changed from 'None' to PRE or directly to ACT

  13. Matching Preferences

  14. State of Patient in EMDIS • PRE – Preliminary search • ACT – Active • You can send requests • You will receive search result updates • SUS – Suspended • STP - Stopped

  15. Watch search result settings • None - the system automatically checksthe newoutgoing messages Preliminary request and Patient update and the new receivedmessages Search result, Search result upd. and Search result upd (!). The other messages (e.g. Key donor update) are not concerned with this setting. • Standard - the system automatically checks the newoutgoing messages Preliminary request and Patient update and the new received messages Search result upd. The other messages (e.g. Search result) are not concerned with this setting. Note: default setting will always be 'None'

  16. Watch search result settings

  17. EMDIS Search results

  18. EMDIS Search Results

  19. EMDIS Search Results – Donor details

  20. Effective management of EMDIS search results • Problem: EMDIS search engines produce a lot of search results updates • Goals • we don’t want to check search results every day • we want to see only important changes of search results System announces important match list updates  New attributes of donors (hints) History of changes of a donor

  21. EMDIS Search Report

  22. EMDIS Search Report

  23. Report Maker

  24. FAQ – matching preferences • How do I get results just from one registry? • Why don’t I see CBUs in the results? • Why don’t I see a donor that I see in BMDW? • How to get MM donors? • What is the difference between mismatch and antigen mismatch? • How to get a specific donor? • Why do I get a donor that doesn’t fit the matching preferences?

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