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The Data Resource Center for Child and Adolescent Health childhealthdata

The Data Resource Center for Child and Adolescent Health www.childhealthdata.org. Debra Read, MPH CAHMI – Child & Adolescent Health Measurement Initiative HRTW National Resource Center Topical Call Feb 1, 2008. 2005/06 NS-CSHCN.

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The Data Resource Center for Child and Adolescent Health childhealthdata

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  1. The Data Resource Center for Child and Adolescent Healthwww.childhealthdata.org Debra Read, MPH CAHMI – Child & Adolescent Health Measurement Initiative HRTW National Resource Center Topical Call Feb 1, 2008

  2. 2005/06 NS-CSHCN • Asked detailed questionnaire for children with special health care needs • Target = 750 CSHCN Interviews per state • Calling and screening of households continued until met the target in all states • One CSHCN randomly selected from households with multiple CSHCN • Data collected from April 5, 2005 until February 5, 2007

  3. 2005/06 NS-CSHCN • 364,841 children screened for special health care needs • Minimum: 5,605 in Delaware • Maximum: 11,275 in California • More than 7,000 in each of 25 states • 40,840 completed interviews for CSHCN • Minimum: 741 in Alaska • Maximum: 939 in California • More than 800 in each of 22 states

  4. CSHCN Interview • Health and functional status • Access to care, utilization, unmet need • Care coordination • Family Centered Care • Transition to Adulthood • Ease of Use & Satisfaction with care • Health insurance and adequacy • Impact on the family

  5. Improved Content for 2005-06 • Functional difficulties list (see resource materials for call) • Health conditions list (see resource materials for call) • Revised/improved care coordination question section • Revised/improved transition to adulthood section (see resource materials for call) • 2005/06: Asked for full sample of 12-17 yrs old CSHCN • Includes new age-appropriate self mgmt question education question for CSHCN ages 5 – 17 yrs old

  6. www.childhealthdata.org

  7. Generating State Profile Reports

  8. Generating an ALL STATES comparison table

  9. Select an indicator for the ALL STATES comparison table

  10. Click on column heading text to sort Outcome #6:CSHCN ages 12-17 who receive services needed for transition to adult health care, work and independence

  11. Section 6B: Transition Issues 8 questions

  12. Coming March 2008! Outcome #6: CSHCN ages 12-17 who receive services needed for transition to adult health care, work and independence • Component A: Receives anticipatory guidance in the transition to adulthood Part A_1: Drs discuss shift to adult providers, if necessary Part A_2: Drs discuss future health care needs, if necessary Part A_3: Drs discuss maintaining health insurance coverage • Component B: Receives age-appropriate self mgmt education and encouragement from providers

  13. Coming March 2008! • Independent national Referent sample of children • 6,113 household interviews completed • One child randomly selected from household • 4,955 did not have special health care needs • Parent or guardian asked every question from the detailed CSHCN interview • NEW STATE PROFILE REPORT OPTION: Comparing 2005/06 Non-CSHCN estimates from national Referent sample with CSHCN estimates in each state

  14. What features are available? • Learnabout the surveys • Search and comparenational, state, and regional survey results for subgroups of children (age, race, sex, income, insurance and health status, etc.) • Get resources and ideas on how to report your findings in a valid and effective manner • Get expert help– by e-mailing us your questions, plus get links to other data sets and resources

  15. Thinking about ways data could be used • Identifying/documenting needs and performance • Building partnerships • Educating Policymakers • Advocacy • Grant Writing

  16. Data Resource Center Technical Assistance

  17. Visit soon! www.childhealthdata.org • National Survey of Children with Special Health Care Needs www.cshcndata.org • National Survey of Children’s Health www.nschdata.org

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