Promoting dialogue, debate and change

1. Welcome to our workshop Please help yourself to pens and paper. We would like everyone to draw a picture about communication. For example A time when you weren’t heard A time when you were heard A time when you had the chance to participate in a dialogue A good experience of communication A bad experience of communication Please don’t use words, even if you really want to. Challenge yourself to communicate with pictures. Have fun! Promoting dialogue, debate and change

2. The Power of Participatory Communication Siobhan Warrington & Clodagh Miskelly Panos London

3. What do we mean by participatory communication?

4. People who are most affected have the opportunity to communicate their knowledge, experience and concerns. They have some control over what is communicated, how it is communicated and who gets to hear or see it. Redressing the power dynamic: listening to the real experts

5. Why is it worth doing?

6. It’s a right It’s effective for the communicator and for the audience

7. It’s the approach not the medium Individual/collective Breadth/depth/distillation Telling the world/addressing a specific local issue Quick one off activity/intensive one off activity/ongoing First hand or vernacular account/story or script development Actuality /fiction

8. Oral Testimony

9. What is Oral Testimony? Oral testimonies are the result of one to one, recorded, in-depth interviews, drawing on personal memory or experience. Our approach Interviewers from the same communities as those they interview. A 6-day participatory workshop covering: topic development, interviewing skills, equipment, ethics and interview relationships, practice interviews. Support to partners to communicate testimonies in different ways to local, national and international audiences.

10. Positive Voices: Oral testimonies to amplify the voices of women affected by and living with HIV and AIDS in South Asia Panos trained 23 women from Sri Lanka, India and Pakistan (16 of whom are HIV+) to record personal narratives of 83 women living with HIV and AIDS Workshops became a safe space for sharing stories Recording and communicating testimonies will raise awareness of the experience of women living with HIV and AIDS in South Asia Which in turn will encourage more women to come forward for testing and support, and contribute to improved services and policies for women living with HIV and AIDS across South Asia

11. Positive Voices: Step-by-step Training of trainers workshop and mentoring National workshops Recording testimonies Midway review meeting Recording testimonies Transcription Translation End of collection meeting Dissemination meetings Dissemination

12. You mentioned that in Chennai, Goa the kind of discrimination that positive women face…. [responds before I completed the question] Especially why women are getting more discriminated is that by the time you are tested positive it is not your house, it’s your husband’s house. The value of you as a daughter is different from the value of you as a daughter in-law. For most women, by the time their husband is either sick or dead – is when they are getting tested or they are pregnant. Sometimes the husband says he doesn’t want to get tested. In most case if the husband is found negative, he’ll leave you anyway. If he dies, the in-laws anyway will throw you out . Is it common in all places? Almost common [everywhere], because I’ve seen that things like the property issue are common for most women because they (the in-laws) will say you are going to die anyway, or the children are there so they’ll force you anyway. Being thrown out from the in-laws house is also common for most women. Then the poverty issue where women being housewives are not able to go out to work especially after marriage. After her husband dies she has to look after her children and at the same time she has to look for a job. But most of the women who have joined the positive network are not even the 10th standard passed. Most of the women are not able to read or write. So then she ends up with just the housework (and no job). And that is one of the main problems with women . (Practice interview, Positive Voices project, Delhi)

13. Digital Storytelling

14. Short (1-4 min) digital videos. A first person scripted narrative about individual experience with still images. The storyteller writes, photographs, records and edits the story

15. Destination Unknown ( AHPN & Panos London)

17. Stories about living with HIV in the UK while at risk of removal 9 participants 2 day workshop to agree framework and develop skills in scripting and photography Supported individual story development and photography 2 day editing workshop 9 digital stories and exhibition used throughout UK

18. Practicalities and ethics

19. Participants, funders and partners all have a stake in decisions about content, medium and use. Having enough structure without stifling participants’ creativity Transparency in decision making and editorial control Managing Expectations Informed Consent - introduced, reviewed, confirmed

20. Over to you

21. Questions?