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Building Collaborative Networks to Help Family Caregivers in Texas PowerPoint Presentation
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Building Collaborative Networks to Help Family Caregivers in Texas

Building Collaborative Networks to Help Family Caregivers in Texas

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Building Collaborative Networks to Help Family Caregivers in Texas

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  1. Building Collaborative Networks to Help Family Caregivers in Texas

  2. Sharon Lewis, RN, PhD, FAAN Denise Miner-Williams, RN, PhD, CHPN University of Texas Health Science Center at San Antonio

  3. Objectives • Describe the purpose of the Community Stress-Busting Program for Family Caregivers (CSBP). • Describe the dissemination and collaborative networking involved in the CSBP. • Discuss the effectiveness of the dissemination of the CSBP in Texas.

  4. Family Caregivers in Texas

  5. Costs of Caregiving • Family caregivers perform incredibly valuable service • At tremendous personal costs • Emotional • Physical • Social • Financial

  6. Costs of CaregivingEmotional • Family relationships • Change when chronic disease enters family • Children disappear - do not help parents • Disagreements about what care and who will provide it

  7. Costs of CaregivingPhysical • Inadequate rest and sleep • Poor eating habits • Fatigue • Delay getting treatment of personal health problems • Ineffective coping via use of drugs, alcohol, smoking

  8. Costs of CaregivingPhysical • Increased risk for • Cardiovascular problems • Stroke • Cognitive impairment • Death

  9. Costs of CaregivingSocial • Life revolves around person with the disease • Withdrawal of friends • Feelings of isolation • Give up/lose sense of self

  10. Costs of CaregivingFinancial • Many older adults do not have long-term care insurance • Financial responsibilities of their care need to be paid for by the family

  11. Costs of CaregivingBurnout • Caused by excessive and prolonged stress • Occurs when you feel overwhelmed and unable to meet demands

  12. 2002 Stress-Busting Program for Family Caregivers

  13. Stress-Busting Program for Family Caregivers • Psychoeducational support groups • 9 weeks • 1 ½ hours/week

  14. Multicomponent Focus Stress-Busting Program

  15. Session 1Introductions • Introductions to the program • Hearing the caregivers’ stories and building support

  16. Session 2Stress and Relaxation – Part 1 • General concepts of stress • Negative effects on caregiver’s physical and emotional health

  17. Principle Underlying Stress Management • You may not be able to change the stressors in your life • But you can choosehow you react or respond to them

  18. Session 3Stress and Relaxation – Part 2 • Stress related to being a caregiver • Creating a relaxation environment

  19. Session 4Grief, Loss, and Depression • Losses related to Alzheimer’s disease • Ongoing grief • Resulting depression

  20. Session 5Coping Skills • Changing family relationships • Humor • Using coping strategies

  21. Session 6Challenging Behaviors • Common behavioral problems of patient with dementia and ways to deal with them

  22. Session 7Positive Thinking • For some caregivers just thinking about the positive aspects can “reframe” their role and help it seem more manageable

  23. Session 8Taking Care of Yourself: Healthy Living • Caregivers frequently devote themselves totally to their loved one • In the process, neglect their own needs

  24. Session 8Taking Care of Yourself: Healthy Living

  25. Principle Underlying Stress Management Key to being an effective caregiver • You can’t always choose your destiny in life….. but you can choose how you cope with it

  26. Session 9Choosing a Path of Wellness • Putting it all together • Setting goals

  27. Stress Management TechniqueRelaxation Breathing • One of the simplest and most effective ways to stop the stress response is to practice relaxation or abdominal breathing

  28. Stress Management TechniqueMeditation • Easy to explain (hard to do!) • Focus exclusively on something without diversion

  29. Stress Management TechniqueMeditation • A state of • Thoughtless awareness • Profound, deep peace that occurs when the mind is calm and silent, yet completely alert

  30. Stress Management TechniqueImagery • Use of one’s mind to generate images that have a calming effect on the body

  31. Stress Management TechniqueJournaling • Allows an individual to express self in writing • Ask caregivers to write about the positive aspects of caregiving

  32. Stress Management TechniqueArt • Allows a person to nonverbally express and communicate feelings, emotions, and thoughts

  33. Stress Management TechniqueMassage • Works well for relaxation of caregiver • Hand massage also helps dementia patients who are agitated

  34. Stress Management TechniqueMusic • Music can help achieve a relaxed state

  35. Stress Management TechniqueAromatherapy • Use of essential oils for the beneficial effects on the mind, body, and spirit

  36. Outcomes of Stress-Busting Program “I was at a very low point in my life. The program saved me from going into a deep depression….it saved my life.”

  37. 2010 Community Stress-Busting Program for Family Caregivers • To disseminate program • Adapt the Stress-Busting Program (SBP) to a “lay leader” model delivered in community settings • Funded by the Administration on Aging

  38. Community Stress-Busting Program Goals • Uses existing community resources to disseminate SBP • Serve many more family caregivers

  39. Community Stress-Busting ProgramCollaborative Effort • University of Texas Health Science Center- San Antonio • WellMed Charitable Foundation • Alzheimer’s Association • Area Agencies on Aging in the Coastal Bend and Capital Area • South Texas Veterans Health Care System • Texas Department of Aging and Disability Services (DADS)

  40. Program Sites for CSBP Hill Country Austin San Antonio Corpus Christi Lower Rio Grande Valley (McAllen, Harlingen, Brownsville)

  41. Community Stress-Busting ProgramMaster Trainers • Responsibilities • Recruit caregiver participants • Lead groups • Train “lay leader” group facilitators • Help to provide management of project

  42. Community Stress-Busting ProgramTraining Program for Master Trainers • 2 ½ day training program focused on • Content of the CSBP • Learning about group dynamics • Implementing CSBP • Managing the project (data collection, completing forms)

  43. Community Stress-Busting ProgramGroup (Lay) Leaders • Responsibilities • Attain certification as group facilitator • Lead groups • Assist in recruiting caregiver participants

  44. Community Stress-Busting ProgramTraining Program for Group Facilitators • 2-day training program focused on • Content of the SBP • Learning about group dynamics • Implementing CSBP

  45. Community Stress-Busting ProgramProject Evaluation • Program evaluation by facilitator • Site evaluation • Session evaluation • Program evaluation by caregiver • Session evaluation • Quality-of-life questionnaires

  46. Community Stress-Busting Program Results • Master trainers - 27 active • Group (lay) leaders – 24 trained

  47. Community Stress-Busting Program Results • Groups ongoing or completed - 34 • Caregiver participants - 159