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NCI’s Clinical Trials Education Program

NCI’s Clinical Trials Education Program. Overview and History (2001-Present). Why educate about clinical trials?. Clinical trials advance cancer care However, only 3-5% of eligible adults participate Many people: Are unaware of clinical trials Harbor distrust about clinical trials

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NCI’s Clinical Trials Education Program

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  1. NCI’s Clinical TrialsEducation Program Overview and History (2001-Present)

  2. Why educate about clinical trials? • Clinical trials advance cancer care • However, only 3-5% of eligible adults participate • Many people: • Are unaware of clinical trials • Harbor distrust about clinical trials • Are misinformed about the clinical trial process

  3. CTEP: Goals • To increase… • Awareness of clinical trials • Knowledge of clinical trials • Enrollment in clinical trials

  4. CTEP: Long-term Objectives • Increase number of… • Referrals to clinical trials • Health care providers who participate in clinical trials • Cancer patients and those at high risk for cancer-especially those in medically underserved populations- who enroll in clinical trials • Leaders in cancer education and advocacy who perceive the CTES as an exemplar standard training tool.

  5. Clinical Trials Education Series • Over 20 resources • Brochures, Workbooks, Web site, Slide shows, Videos, DVD, CD, and Booklets • Created as a train-the-trainer program • Targeted education and outreach to health professionals and the community

  6. The Dissemination Model Short term Outcomes Intermediate Outcomes Long termOutcomes Inputs Activities Outputs

  7. CTES Components

  8. The Basic Workbook • For… • Individuals wanting to develop a basic understanding of clinical trials • Content… • Clinical trial process • How clinical trials lead to advances in care • Participant protection • Barriers to participation • Finding clinical trials • Exercises and reviews

  9. The In-Depth Program • For… • Health care professionals • Others seeking a more in-depth understanding of clinical trials • Content… • Same as basic workbook and more— designing a trial and interpreting results • Conducting, locating, and referring to trials • Case study

  10. A Resource Guide for Outreach, Education, and Advocacy • For… • Individuals and organizations engaging their communities in clinical trials outreach and education activities • Content… • Educating yourself and others • Reaching underserved populations in your community outreach • Working with the media • Working with medical organizations

  11. Brochures (plain language) • For… • Cancer patients considering a clinical trial (English/Spanish) • Medicare recipients considering a clinical trial • Content… • What are clinical trials? • What are my rights? • What are the risk and benefits? • What questions should I ask? • What does Medicare pay for? Online only

  12. Cancer Prevention Brochures • For… • Healthy people who are at high risk for cancer • Content… • What are prevention clinical trials? • What will I be asked to do? • What are my rights? • What questions should I ask? • Available in English and Spanish

  13. Providing Your Tissue for Research: What You Need To Know • For… • Investigators • Individuals who have been asked to provide tissue for research • Content.. • A targeted list of questions and answers on how and why tissue specimens are collected and used in research

  14. Booklets • For… • Cancer patients considering a clinical trial • Cancer patients considering a chemoprevention trial • Content… • What are clinical trials? • What happens in a clinical trial? • Should I take part? To be online only Online only

  15. Taking Part in Cancer Treatment Research Studies NEW! • For… • Individuals considering taking part in cancer treatment research studies • Content… • What are clinical trials • Phases of clinical trials • Randomization • Protecting patients • Risks and benefits of participating • Important questions patients and caregivers should ask • How to find clinical trials

  16. Slide programs (English) • Cancer Clinical Trials: The Way We Make Progress Against Cancer • Cancer Clinical Trials: The Basics • Cancer Clinical Trials: In-Depth Information

  17. Slide programs (Spanish) • Conversemos un rato…Información para combatir el cáncer en su comunidad • La historia de José…Y cómo él ayudo a encontrar nuevas maneras de prevenir el cáncer • La historia de Ana…Y cómo ella recibió tratamiento para el cáncer

  18. Web course • Incorporating Cancer Clinical Trials Into Your Practice

  19. Clinical Trials Education Series CD

  20. Trainer’s Guide

  21. Videos • Cancer Trials... Because Lives Depend On It • Cancer Clinical Trials: An Introduction for Patients and Their Families

  22. DVD NEW! • Newly updated DVD, Summer 2007 • Discusses treatment clinical trials for patients and families considering participation • Updated version of the two videos combined • Designed for education

  23. How-To Guide • Using the Clinical Trials Education Series • Describes the CTES resources • Suggests various ways in which they might be used • Provides detailed examples for using these materials intraining programs

  24. Questions?

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