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Building effective partnerships

Hilkka Kettinen, Chairman of the World Headache Alliance, addresses the pressing issue of headache disorders during the 4th IAPO Global Patients’ Congress. Highlighting the global burden, Kettinen emphasizes that headaches are common, debilitating, and sometimes ignored. WHO reports migraine as a notable cause of disability, impacting millions daily. The presentation outlines a three-stage action plan: acquiring knowledge, raising awareness, and promoting change through effective partnerships, notably the Lifting The Burden campaign. Collaboration among stakeholders is essential to alleviate the burden of headaches worldwide.

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Building effective partnerships

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  1. Building effective partnerships Hilkka Kettinen Chairman World Headache Alliance 23/2/2010 - 4th IAPO Global Patients’ Congress

  2. World Headache Alliance WHA - increasing awareness, reducing burden

  3. Headache disorders Identifying the problem Headache disorders are • real • common • occur everywhere in all age groups • burdensome • remediable

  4. Headache disorders • WHO ranks migraine alone 19th amongst causes of disability (World Health Report 2001) • Other primary headache burden combined, headache disorders are likely to be in top 10 • In E, approx. 180 million days absent from school or work because of migraine every day; estimated direct cost >20 billion euros p.a.

  5. The challenge: “It’s only headache.”

  6. Action in three stages • Acquire knowledge for action • Use knowledge to raise awareness • Exploit awareness to promote change

  7. Lifting The Burden A Global campaign to reduce the burden of headache worldwide www.l-t-b.org Director Dr. Timothy Steiner, London, UK

  8. History • The idea 1997, foundation of WHA; • 2000 a meeting at WHO, headache recognised; • 2001 World Health Report, migraine high in YLD;

  9. ...continued • 2004 Lifting The Burden launched, a formal partnership with WHO, WHA, IHS and EHF (professional NGOs); • 2007 Neurological disorders in public health; • 2009 LTB becomes an independent charity

  10. Lifting The Burden • opportunistic; • ambitious and realistic; • partnerships based on projects

  11. Eurolight - Highlighting the impact of headache in Europe - Pilot project in Luxembourg 2003- - Directed and initiated by Colette Andrée, Switzerland/Luxembourg, a patient representative

  12. Eurolight Financial support from EC (European Agency of Health and Consumers, EAHC) Hosted and lead by Center of Public Health Research, Luxembourg

  13. Partnership in Eurolight - 24 patient groups, hospitals, academic institutions; • associated and affiliated partners; • results and continuation in 2010

  14. Headache days and months • WHA: WHAM in September; • EHA: European Migraine Day of Action 12 September . National headache support groups

  15. Challenges in partnerships • finding agreement; • focus; • cultural differences; • requires leadership, one partner

  16. Lessons • Persevere; • Motivate your partners; • Stay focused but take opportunities; • Lead

  17. Thank you for your attention. h.j.kettinen.91@cantab.net

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