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This paper explores strategies to improve attendance at the Utah Neonatal Follow-Up Program. It provides insights on attendance trends, barriers, and recommendations for enhancing clinic satisfaction. The study includes family and professional focus group findings, limitations, attendance barriers, and recommendations. Suggestions for further study and trainee recommendations for the URLEND program are also discussed.
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Barriers and Solutions to Neonatal Follow-Up of High Risk Infants in the State of Utah Trainees: Juliana Briscoe, Sherrily Brown, Melissa Herzig, Kerry Prout, and Debbie Thomas
Author Note The authors of this paper wish to acknowledge the faculty mentors for this project: • Mentors: Sarah Winter & Vicki Simonsmeier • Family Consumer Consultant: Christine Evans • Core Faculty: Paula Peterson, JoLynn Webster, Gretchen Peacock, Heidi Lane, and Terry Pavia
Problem • Low attendance rates at the Utah Neonatal Follow-Up Program (NFP) • Desire to know what is being done well in clinic • Desire to know what can be improved upon in clinic
Goals • Identification of NFP attendance trends through quantitative data • Identification of NFP attendance barriers through qualitative data • Recommendations to the NFP team from research findings
Quantitative Method • Current attendance trends were identified via data analysis of the NFP follow-up rates from the five largest referral Utah NICU facilities in 2011.
Qualitative Method • Perceptions of program value • Identify potential barriers and solutions to NFP attendance • Baseline knowledge and value of program • Identify potential barriers and solutions to NFP attendance Family Focus Group (SLC & Ogden) Professional Focus Group (PCMC & McKay-Dee)
Study Limitations • Lack of representation of target group families • Four focus groups with a small sample size • Lack of diversity
NFP Attendance Barriers • Lack of education provided to families & NICU staff • Lack of communication between facilities • Lack of NFP and NICU communication • Distance of clinic locations • Medical vs. developmental priorities • Lack of parental understanding that development needs evaluation over time
Recommendations for Improving NFP Attendance • Education provided to families & NICU staff • Communication between facilities • Improve NFP and NICU communication for family contact • Additional clinics
Recommendations for Improving Clinic Satisfaction • Provide a NFP presentation to PCMC Grand Rounds • Feasibility of providers • Check off sheet and check out process • Post-appointment summary • Strategic communication plan • Scheduling consideration
Suggestions for Further Study • Broaden the diversity of the focus groups • Target participants who are referred to the NFP, but do not attend or have not completed the program • Gather data from community pediatricians
Trainee Recommendations for the URLEND Program • Exposure to and problem-solving of systemic, billing and policy issues related to interdisciplinary clinics • Increase opportunity and exposure to clinic administration and operations • Additional emphasis on diagnoses i.e. CP/Down’s Syndrome • Increase family interaction in an informal setting • Increase clinical sites for URLEND trainees