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Joint DG INFSO ICT for Inclusion & JRC IPTS Information Society Workshop on:

Joint DG INFSO ICT for Inclusion & JRC IPTS Information Society Workshop on: Long-term care challenges in an ageing society: the role of ICT and migrants Brussels, 19 th January 2010 Results from a cross-country comparison on Germany, Italy, Spain and the UK

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Joint DG INFSO ICT for Inclusion & JRC IPTS Information Society Workshop on:

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  1. Joint DG INFSO ICT for Inclusion & JRC IPTS Information Society Workshop on: Long-term care challenges in an ageing society: the role of ICT and migrants Brussels, 19th January 2010 Results from a cross-country comparison on Germany, Italy, Spain and the UK Stefano Kluzer, JRC–IPTS Information Society Unit Joint Research Centre (JRC) Institute for Prospective Technological Studies The European Commission´ s Research-Based Policy Support Organisation

  2. Content of presentation • Research challenges • Informal caregivers • ICT use in LTC at home • Barriers to ICT opportunities for informal caregivers • Suggestions for action

  3. Research challenges • Long-term care (LTC) = informal & socio-cultural specific activities • Lack of common definitions (scope / content) -> OECD pilot • Lack of data (general / comparable) • ICT-specific in LTC • Recent, still limited diffusion -> limited information beyond experts • Few studies (Empirica) • Migrant-specific • Comparable statistics in EU under development • Informal work -> limited coverage by labour/employment surveys • Undocumented status -> lack of data + difficult to interview migrants Exploratory research + caution on conclusions !!!

  4. Research method • Desk-based analysis of reports and statistics -> LTC provision, organization and ICT-related policies + migrant labour in LTC sector • Web searches and interviews with key informants -> ICT-based initiatives and services for LTC at home • in DE, IT and ES, tot. 40 informal migrant caregivers interviewed about their knowledge, use and expectations regarding ICT in care work

  5. Caregivers definitions • Migrants in any category: as paid caregivers in all countries; as carers in DE and UK *See (Fujisawa & Colombo, 2009)

  6. Informal caregivers play a crucial in LTC • Key features of migrant paid caregivers: • Significant numbers in all 4 countries • Almost only women (informal care assistants) • Different migration projects, residence and work contractual status • High vulnerability, reflecting low rights (informal care assistants)

  7. Challenging work/life conditions

  8. Additional challenges for migrant caregivers - lack social support network - intercultural and language barriers - lack basic understanding of care context (players, rules etc.) - due to work/residence status -> invisible + difficult access to training, support etc. Esp. newly arrived and from ‘culture-linguistically distant’ countries

  9. Policies pay still limited attention to informal caregivers • LTC policy and informal caregivers (carers) • Formally acknowledged, but focus mostly on financial measures • UK has established and articulated measures (and robust data on carers) • ICT policies for LTC • UK: coherent national strategy / carers’ multiple needs considered • DE, ES and IT: no national strategy / carers “play –if at all- a minor role” • Carers movements • UK: long-established and effective -> (national level) lobbying, research, information; (local level) carers’ centres, services and support • DE: first national carers association Wir pflegen in March 2008

  10. Actors in LTC delivery at home Care organizations Care worker Healthcare professionals Cared person Doctors Carer Info&service providers Informal care assistant Informal care assistant Carers assoc. Carers Voluntary groups

  11. Situation of ICT in LTC at home Care organizations Mainstream: social alarms + assistive tech. Pilots: Telecare/Telehealth Care worker Healthcare professionals Cared person Doctors Carer Info&service providers Informal care assistant Informal care assistant Carers assoc. Carers Voluntary groups

  12. Situation of ICT in LTC at home Mainstream: mobile phones, PCs, e-mail, websites … GPS Care organizations Mainstream: social alarms + assistive tech. Pilots: Telecare/Telehealth Care worker Communication & Coordination Emergency mgt On the job support Healthcare professionals Cared person Doctors Carer Info&service providers Informal care assistant Informal care assistant Carers assoc. Carers Voluntary groups

  13. Situation of ICT in LTC at home Mainstream: mobile phones, PCs, e-mail, websites … GPS Care organizations Mainstream: social alarms + assistive tech. Pilots: Telecare/Telehealth Care worker Communication & Coordination Emergency mgt On the job support Healthcare professionals Cared person Doctors Emerging Emerging Carer Info&service providers Informal care assistant Informal care assistant Carers assoc. Carers Voluntary groups

  14. Situation of ICT in LTC at home Mainstream: mobile phones, PCs, e-mail, websites … GPS Care organizations Mainstream: social alarms + assistive tech. Pilots: Telecare/Telehealth Care worker Communication & Coordination Emergency mgt On the job support Healthcare professionals Cared person Doctors Emerging Emerging Carer Mainstream: phone-based and web initiatives Info&service providers Informal care assistant Peer support Info & guidance Help lines Training Info & guidance Help lines Training Informal care assistant Carers assoc. Carers Voluntary groups

  15. Situation of ICT in LTC at home Mainstream: mobile phones, PCs, e-mail, websites … GPS Care organizations Mainstream: social alarms + assistive tech. Pilots: Telecare/Telehealth Care worker Communication & Coordination Emergency mgt On the job support Healthcare professionals Cared person Doctors Emerging Emerging Carer Mainstream: phone-based and web initiatives Info&service providers Informal care assistant Peer support Info & guidance Help lines Training Info & guidance Help lines Training Informal care assistant Carers assoc. Carers Voluntary groups

  16. Care organizations Healthcare professionals Doctors Examples of ICT for informal caregivers Care worker Cared person LifeSensor (DE) Carer Info&service providers Informal care assistant Informal care assistant Carers assoc. Carers Voluntary groups

  17. Care organizations Healthcare professionals Doctors Examples of ICT for informal caregivers Care worker Cared person LifeSensor (DE) Carer Information & guidance - Carers Direct Helpline (UK) - Nottingham (assistive tech) Training - Sercuidador (ES) - Caring with confidence (UK) Info&service providers Informal care assistant Informal care assistant Carers assoc. Carers Voluntary groups

  18. Care organizations Healthcare professionals Doctors Examples of ICT for informal caregivers Care worker Cared person LifeSensor (DE) Carer Information & guidance - Carers Direct Helpline (UK) - Nottingham (assistive tech) Training - Sercuidador (ES) - Caring with confidence (UK) Info&service providers Informal care assistant Info – mutual help - Carers UK - Un cuidador, 2 vidas (ES) - SEKIS (Berlin, DE) Informal care assistant Carers assoc. Carers Voluntary groups

  19. Care organizations Healthcare professionals Doctors Examples of ICT for informal caregivers Care worker Cared person LifeSensor (DE) Carer Information & guidance - Carers Direct Helpline (UK) - Nottingham (assistive tech) Training - Sercuidador (ES) - Caring with confidence (UK) Info&service providers Online community - Cuidadoras en Red (ES) Training - Aspasia (IT) Informal care assistant Info – mutual help - Carers UK - Un cuidador, 2 vidas (ES) - SEKIS (Berlin, DE) Informal care assistant Carers assoc. Carers Voluntary groups

  20. ICT in LTC policies Opportunities and barriers for informal caregivers Barriers • Not targeted at carers • → Carers’ needs overlooked Use of ICT Lack of knowledge & awareness Few initiatives Limited availability of ICT migrant specific ICT skills: level & match Privacy/security fears ICT access restrictions at work Technical barriers Language barrier Residence status -> barrier/incentive Opportunities Information ICT can improve Training Large migrant communities with ageing members Quality of Care Communication Coordination Collaboration High ICT use/motivation by migrants Working conditions health & wellbeing Private life social integration

  21. ICT in LTC policies Breaking Barriers & Seizing Opportunities • Awareness raising: • carers’ needs • ICT opportunities • ICT impact • carers’ needs knowledge & awareness Use of ICT few initiatives Digital inclusion measures: targeted and focused availability skills: level & match Privacy & trust-building solutions privacy/security fears migrant specific Adapt ICT for LTC devices: icon-based/multilingual access • Mother tongue/multilingual • - information - (vocational) training - online social networks technology language barriers incentive to use ICT ICT for languagelearning

  22. Thank you !!! s.kluzer@gmail.com

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