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Implementing the Recovery Package: Promoting Understanding and Improving Care for Cancer Survivors

This session aims to provide an overview of living with and beyond cancer, promote wider understanding of the Recovery Package, explore stratification improvements in early detection and diagnosis, and discuss advancements in treatments and transitioning from acute to a long-term condition. With increasing numbers of people surviving cancer, it is crucial to develop a tailored recovery package to support their needs. Join us to learn more about the importance of survivorship care.

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Implementing the Recovery Package: Promoting Understanding and Improving Care for Cancer Survivors

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  1. <enter name> <enter role> 2016 Implementing the Recovery Package

  2. Purpose of session • Overview of Living with and Beyond Cancer • Promote wider understanding of Recovery Package • Explore stratification

  3. Improvements in early detection and diagnosis More advanced treatments Move from acute to long term condition Increasing numbers of people living with and beyond cancer

  4. 50% of people with cancer in the UK now survive at least 10 years ( April 2014) Source: Macmillan Cancer Support identified median survival times based on research by the Cancer Research UK Cancer Survival Group at the London School of Hygiene and Tropical Medicine. Incidence and mortality data for the survival analysis are originally sourced from the Office for National Statistics.

  5. The survival rates are changing Macmillan Cancer Support (2011) identified median survival times based on research by the Cancer Research UK Cancer Survival Group at the London School of Hygiene and Tropical Medicine research.

  6. The survival rates are changing Total Prevalence - now Total Prevalence - 2030 Maddams J, Utley M, Moller H. Projections of cancer prevalence in the United Kingdom, 2010-2040. Br J Cancer 2012; 107: 1195-1202.

  7. Not everyone is living well

  8. Cancer Patient Experience Survey 2014 25% not informed about side effects before treatment 74% - Not offered a written assessment and care plan 41% - Not enough support from health and social care services after

  9. Multi morbidity is the norm, not the exception Source: York Centre for Health Economics Research Paper 96

  10. Cancer and other morbidities Source: Macmillan’s Routes from Diagnosis programme

  11. The English National Cancer Survivorship Initiative Four Priorities Recovery Package Redesign follow-up Physical activity and healthy lifestyle Consequences of Treatment

  12. Living With and Beyond Cancer

  13. The Five Survivorship Stages Improving Survivorship Intelligence

  14. The NCSI defined four priorities: Recovery Package Redesigning follow-up Physical activity Consequences of treatment

  15. National recognition

  16. By 2020 • Independent Cancer Taskforce A Strategy for England 2015- 2020 • NHS Five Year Forward View • Jeremy Hunt - Secretary of State for Health has announced new measures to develop a tailored recovery package for everyone surviving cancer. • A more personalised treatment plan and better support to live well, with and beyond the disease.

  17. The NCSI defined four priorities: Recovery package Redesigning follow-up Physical activity Consequences of treatment

  18. Breast 80% patients • Colorectal 50% patients • Testicular 95% patients • Project management • Clinician engagement • Patient support • Remote surveillance

  19. The ‘How To Guide’

  20. The NCSI defined four priorities: Recovery package Redesigning follow-up Physical activity Consequences of treatment

  21. Physical Activity improves health and wellbeing outcomes Macmillan Cancer Support (2011). The importance of physical activity for people living with and beyond cancer.

  22. Quick Question...

  23. UK Physical Activity Guidelines by Chief Medical Officer Be active every day aiming to accumulate 150 minutes moderate intensity physical activity in bouts of 10 minutes or more. Exercise to improve muscle strength on at least two days of the week. If at risk of falling, use exercises to improve balance and co-ordination. Avoid sedentary behaviour.

  24. Do you think adults change their lifestyle behaviours after a cancer diagnosis? • 46% of smokers quit • 30.1% exercise LESS

  25. ‘Exercise is safe during and after cancer treatment’.(Expert Panel at American College of Sports Medicine) • https://www.penncancer.org/pdf/pal/American_College_of_Sports_Medicine_Roundtable_on_23.pdf

  26. Individual behaviour changeThe teachable moment • People are more inclined to change their lifestyle behaviour following a cancer diagnosis • They do not do so without a quality behaviour change intervention • People are more inclined to change if the issue is raised by a senior health care professional • 72% of GPs and 60% of Oncologists only talk to a few or none of their cancer patients about moving more

  27. Visit www.macmillan.org.uk/physicalactivity

  28. The NCSI defined four priorities: Recovery package Redesigning follow-up Physical activity Consequences of treatment

  29. ‘consequences of cancer and its treatment’ means the wide range of long-term physical and psychosocial changes that seem to be associated with cancer and its treatment however long ago the diagnosis and treatment may have been given.. • This is often referred to by a range of different names, including; • side effects • late effects • toxicity • adverse effects • long-term effects • chronic effects • consequences of treatment

  30. Persistent hair loss Body image issues Mental health problems Swallowing/speech problems Heart disease Breathing difficulties Nausea, vomiting Lymphoedema and osteoporosis Urinary or bowel incontinence Sexual difficulties

  31. CoT Resources Visit http://be.macmillan.org.uk/be/s-778-consequences-of-cancer-and-its-treatment.aspx for more

  32. CoT Resources for Professionals

  33. CoT Resources for people affected by cancer

  34. Early discussions about work and finance can be vital in preventing problems. • It doesn’t have to be a long discussion • You don’t have to be an expert but do need to understand the importance of work for health and wellbeing. • Macmillan has developed a range of online and offline resources to support you to have conversations and direct patients to information on work and finance and relevant services

  35. 82% of people think it is important to continue to work... • ...but 47% have had to give up work or change roles as a result of their diagnosis • Over 60% of PLWC reported no health professional informed them about the impact cancer might have on their working life

  36. Work is good for physical and mental health and well-being Work can help promote recovery and rehabilitation and improve quality of life. Is work good for your Health and Wellbeing. Waddell G, Burton AK (2006). Working for a healthier tomorrow Dame Carol Black, (2008).

  37. Work and Finance Resources Visit : www.macmillan.org.uk/workandprofessional www.macmillan.org.uk/financialsupport

  38. Living With & Beyond Cancer Resources These can be ordered from : be.macmillan.org.uk/ recoverypackage

  39. Any Questions?

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