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The Mission of the Family Support Network

The Mission of the Family Support Network. …to promote and provide support for families with children who have special needs, premature births, and chronic illness. FSN of Central Carolina. FSN of Mecklenburg County. FSN of Northeastern NC. FSN of the Crystal Coast.

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The Mission of the Family Support Network

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  1. The Mission of the Family Support Network …to promote and provide support for families with children who have special needs, premature births, and chronic illness.

  2. FSN of Central Carolina FSN of Mecklenburg County FSN of Northeastern NC FSN of the Crystal Coast FSN of Northern Piedmont FSN of Eastern NC FSN of Region A FSN of the Foothills FSN of the Sandhills FSN of Greater Cape Fear Region FSN of Southeastern NC FSN of Greater Forsyth FSN of Southern Piedmont FSN of the High Country FSN of Wake County FSN/Hope Network FSN of Western Carolina Family Support Networkof North Carolina September 2007

  3. “Families are at a very vulnerable time during the birth & recovery of a sick infant. They need support & nurturing to be able to parent their fragile infant. Our focus must be to support the family unit for they are the one constant in this infant’s life.” Ann Ramirez, Mission Hospital, Asheville.

  4. Family Support Network Presence in Hospital NICU’s 58% (262 of 452) of the NICU beds in North Carolina are served by Family Support Network Programs. Additional NICU’s have family support activities through programs such as March of Dimes and Smart Start.

  5. The Value of Connecting Families • Connects families to others who have had similar experiences • 80% of families reported a reduction the sense of isolation • Increased knowledge of special health care needs and available resources • Increased confidence in parenting

  6. “Family-centered care and the Family Support Network are a vital part of comprehensive care for critically-ill newborns. FSN services and resources help our NICU families and staff to deal with the many stresses and challenges that come with neonatal intensive care.” Dr. Stephen Engelke, neonatologist, PCMH

  7. “I will never be able to say thank you enough for the support and encouragement given to me and my family. “

  8. Best practice supports • 24/7 family presence in NICU. • Parent’s included as part of the team on rounds. • Family Advisory Councils. • Increased patient safety/reduce medical errors.

  9. Services Offered to Families by Hospitals Number of hospitals=11Not all hospitals responded to all questions

  10. Does the hospital policy encourage family presence in the NICU?Number of hospitals=11Not all hospitals responded to all questions

  11. “The care we provide infants at the start of their lives is just the beginning. It is imperative that we also care for, support and educate their families so that the good intentions we put in place early can be nurtured and carried forth to greater fruition.” Dr. Paul Fairgay- Mission Hospital, Asheville

  12. “Thank you for valuing my opinions.”

  13. The Value of PFCC • Family-centered care • Family education • Facility design • Quality improvement • Patient safety • Developmental care

  14. Pain management • Discharge/transition planning • Hospice/palliative care • Bereavement support • Ethics/infant care review • Diversity/cultural competence • Service excellence • Research & evaluation

  15. Changes as a result of FACFamily Advisory Councils(FACs) in NICUs • Families have a voice for their concerns • Input on building plans • Specific programs added • Memorial Service • Family Presence 24/7 • Lactation Rooms • Family Resource Room • Nourishment Room • Our Children's Garden • Families are involved in hand washing policies • Families are involved in NICU video and will be involved in the video on Parent Participation on Rounds-

  16. Family/FSN Presence on Hospital Committees • Developmental care • Hospice/palliative care • Family centered care • Family Education • Quality improvement • Patient safety • Discharge/transition planning • Bereavement support • Service excellence • Ethics/Infant Care • Facility Design and Planning

  17. Quote from Tara Bristol, UNC Hospital “Parents should be consistently involved on all committees--NICU- and Hospital-wide, which affect patient care; parent-to-parent matching needs to be organized; regular opportunities for parents of NICU grads to host lunches/dinners for current families; need greater diversity on the Family Advisory Board.”

  18. Recommendations • Bring families to the PQCNC table • Institute for Family Centered Care • Make NC a model state for NICU care.

  19. Family Support NetworkNorth Carolina FSN-NC State Office 1.800.852.0042 www.fsnnc.org

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