'Rare disease' diaporamas de présentation

Chapter 1 Frank/Bernanke, Principles of Microeconomics

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Facing the Media

Facing the Media. A Course To Prepare CDC Spokespersons for Crisis and Emergency Situations . Introduction and Understanding a Crisis. Learning Objectives. Communicate the importance of the spokesperson and his or her roles and responsibilities during a crisis or emergency.

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Research Infrastructures to boost R&D in the field of rare Diseases

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THE IMMUNE SYSTEM

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a typical hemolytic uremic syndrome

a typical hemolytic uremic syndrome. DAY. 24 September. @ aHUS24Sept. www.aHUSallianceAction.org. @ aHUSallianceAct. National aHUS Patient Organizations are Paramount. aHUS Alliance provides a global P artership Platform a mong People and Organizations.

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Assessing Innovation as Part of Stakeholder Communications

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Case-Control Studies for Outbreak Investigations

Case-Control Studies for Outbreak Investigations. Goals. Describe the basic steps of conducting a case-control study Discuss how to select cases and controls Discuss how to conduct basic data analysis (odds, odds ratios, and matched analysis)

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Treating patients with epidermolysis bullosa

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Joint Hospital Grand Round Management of Chronic Gastric Volvulus

Joint Hospital Grand Round Management of Chronic Gastric Volvulus. Kenny K Y Yuen Tseung Kwan O Hospital 20th January, 2007. Clinical scenario History Predisposing factors Classifications Clinical presentations Investigations Treatment . Clinical Scenario. F/29

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EMPORIATRIC MEDICINE AND THE HIV-INFECTED TRAVELER

EMPORIATRIC MEDICINE AND THE HIV-INFECTED TRAVELER. ISSUES FOR ALL TRAVELERS. Generally want at least 4-6 week lead time prior to departure to assess travel needs, especially vaccines and need for malaria chemoprophylaxis

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Review Jeopardy

Review Jeopardy. Bacteria. Virus. Immunity. Disease Today. Mish-Mash. 100. 100. 100. 100. 100. 200. 200. 200. 200. 200. 300. 300. 300. 300. 300. 400. 400. 400. 400. 400. 500. 500. 500. 500. 500. Help. (1) Save a duplicate of this template.

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Paediatric aspects of Tuberculosis

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The James Lind Alliance

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Which Clinical Prediction Rules have been taken up by guidelines?

Which Clinical Prediction Rules have been taken up by guidelines?. Clare Bankhead, Grainne Cousins, Rose Galvin, Karen Kearley, Claire Keogh, Dan Lasserson, Uriell Malanda, Susan Mallett , Ivan Moschetti , Sharon Sanders, Richard Stevens , Danielle Van der Windt, Emma Wallace.

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Selecting a Study Design

Selecting a Study Design. Goals. Describe the cohort study design. Describe the case-control study design. Compare situations in which cohort and case-control study designs should be used. About Analytic Studies. We can use analytic studies to test hypotheses. We want to know:

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The Contribution of the Biotech Industry to the Development of Treatments for Rare Diseases

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Conditional Probability, Bayes Theorem, Independence and Repetition of Experiments

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Hirayama Disease

Hirayama Disease. Hirayama Disease. Aka Juvenile Muscular Atrophy of the Distal Upper Extremity Rare disease that affects predominantly males in their 2 nd or early 3 rd decade of life Features include muscular weakness and atrophy in the hand and forearm

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APARDO -Who we are and What we Do

APARDO -Who we are and What we Do. Background. Considerable disparity across the Asia-Pacific region in terms of orphan drug and rare disease policy (due to varying levels of economic development, healthcare coverage and patient engagement)

237 views • 10 slides