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Briefly, explain the work that you do and why doing HIV and media work is important to you.

Briefly, explain the work that you do and why doing HIV and media work is important to you. Despite HIV/AIDS having been around for 30 years, why is now a more important time than ever, especially for people living with HIV, to expand its reach to the media and create their own media?.

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Briefly, explain the work that you do and why doing HIV and media work is important to you.

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  1. Briefly, explain the work that you do and why doing HIV and media work is important to you.

  2. Despite HIV/AIDS having been around for 30 years, why is now a more important time than ever, especially for people living with HIV, to expand its reach to the media and create their own media?

  3. How do we as people living with HIV and allies integrate our personal stories into the bigger issues and bigger picture? How do we intentionally move beyond personal stories as a part of that, what are the major issues and underreported messages that need to be better articulated in the media?

  4. What are some case studies of speaking out or advocacy campaigns with a media component that you can share that has serious impact in your community?

  5. Background: The battle for access to affordable ARVs in Asia

  6. AIDS treatment: Patents granted

  7. LEGAL ACTIONS COMMUNITY ACTIONS MEDIA ADVOCACY DIRECT ACTION LEGISLATIVE ADVOCACY

  8. Thai groups and the EU delegation in Thailand

  9. Brief History of Community Mobilization against India-EU FTA

  10. EU-India FTA • Negotiations started in 2007 • Complete secrecy • EU not known to be as aggressive on IP as US • However DNP+ and other Indian groups start asking questions • Growing concern and vague responses from EU and Indian government officials • Start following dates of negotiations and hold protests outside EC office in Delhi and the Commerce Ministry

  11. Protest in front of EC office in Delhi Coalition of groups working on health, agriculture, environment, trade unions Police detention Action results in meeting with Indian government negotiators 17 March 2009

  12. Strategy • Direct actions: protests • Letters to government + analysis of TRIPS-plus measures sent to government • Responses to EC statements • Media actions • Working with broader coalition – Forum Against FTAs that looks at issues of health, farmers, trade unions, etc.

  13. Police Arrest during protest May-2010

  14. Arrests Over AIDS Drugs in India Oct 2010 Comment posted "I have never seen so many police people with batons and guns.“ http://www.bbc.co.uk/news/health-11488711

  15. Global Fund ambassador visits India How to get our concerns on FTAs to her? Activists donate 5 ml blood to get FTA message to Carla Bruni

  16. EU-India FTA protests spread • AS other groups start realising the negative impacts of EU-India FTA, Asia Pacific Network also takes up the issue in a big way • Protests start across South and South East Asia

  17. Protest in Indonesia

  18. Protest in Malaysia

  19. Protest in Korea

  20. Meeting on Next Steps/Moves “We need to mobilize 5000 people to ensure that none of our members undergo the police atrocities during the protest”…. the unanimous voice.

  21. PLHIV Travel from all parts of Asia

  22. Post WAR Session

  23. Global Media Coverage Al-Jazeera http://www.youtube.com/watch?v=MCdeT7iDTPM CNN IBN http://ibnlive.in.com/news/proposed-fta-to-raise-hivaids-drug-prices/145250-17.html Agence France Presse (AFP) HIV protesters tell India to defy EU drug demands http://www.google.com/hostednews/afp/article/ALeqM5jHrnJX00rd-uFawjhZV0ycHVnelQ?docId=CNG.72baebb483973586ff9863836d430cfa.631 EuropaPress Thousands of people with HIV protest in India on generic medicines http://www.europapress.es/epsocial/noticia-mas-3000-personas-vih-manifiestan-nueva-delhi-india-defensa-medicamentos-genericos-20110303091944.html EU Observer Thousands march in India against EU trade deal http://euobserver.com/9/31911

  24. Radio France International HIV patients demand India rejects EU trade demands http://www.english.rfi.fr/asia-pacific/20110302-hiv-patients-ask-india-reject-eu-trade-demands The Pharma Letter AIDS activists continue campaign to stop EU-India FTA http://www.thepharmaletter.com/file/102494/aids-activists-continue-campaign-to-stop-eu-india-fta.html The Telegraph (Calcutta, India) Patients rally against trade pact with EU http://www.telegraphindia.com/1110303/jsp/nation/story_13661337.jsp The National (UAE) EU-India deal to ban generic drugs angers the HIV-positive http://www.thenational.ae/news/worldwide/south-asia/eu-india-deal-to-ban-generic-drugs-angers-the-hiv-positive

  25. PharmTech.com EU­India FTA Dispute Continues http://pharmtech.findpharma.com/pharmtech/News/EUndashIndia-FTA-Dispute-Continues/ArticleStandard/Article/detail/709944?contextCategoryId=35097 Doctissimo (Swiss, French, translated) The India / Europe Free Trade Agreement: a danger for thousands of patients? http://news.doctissimo.fr/l-accord-de-libre-echange-inde-europe-un-peril-pour-des-milliers-de-patients-_article7768.html Associated Press (reproduced in The Independent, Los Angeles Times, CNBC, Arab News, The Canadian Press, Washington Examiner, Forbes, Buffalo News, USA Today, Connecticut Post and others) Thousands of people with HIV protest India-EU trade deal restricting access to cheap drugs http://www.latimes.com/news/nationworld/nation/wire/sns-bc-as--india-eu-drugs,0,6773632.story The Hindu HIV patients say 'no' to IP provision on generic drugs http://www.thehindu.com/news/cities/Delhi/article1503867.ece

  26. Public Announcement India will not provide data exclusivity: Anand Sharma Business Standard Reporter / New Delhi March 30, 2011, 0:10 IST The government on Tuesday took a firm stand on protection of intellectual property rights (IPR) and the aspect of data exclusivity for drug manufacturers saying that the country would not extend data exclusivity that would hamper the domestic pharma industry. This was asserted during a meeting of consultative committee of the Parliament on challenges in Intellectual Property Rights-international and domestic, which was chaired by minister of commerce and industry Anand Sharma. "India does not provide data exclusivity for pharmaceuticals and agro-chemicals which is in the paramount interest of our generic pharmaceutical industry as grant of data exclusivity would have considerable impact in delaying the entry into the market of cheaper generic drugs," Sharma said in the meeting. Data exclusivity provides protection to the technical data generated by innovator companies to prove the merit of usefulness of their products. In the case of pharmaceuticals, it means the data generated by drug companies through expensive global clinical trials to prove the efficacy.

  27. and safety of their new medicine. By gaining exclusive rights over this data, innovator companies can prevent their competitors from obtaining marketing licence for low-cost versions during the tenure of the exclusivity. Indian drug firms that make generic versions of innovator medicines get their approvals after proving that their product is bio-equivalent to the original drug. In other words, they do not repeat the same clinical trials conducted by the innovator company to generate data needed to prove its safety under current laws. Under the India-EU Free Trade Agreement (FTA) which is currently under negotiation and is expected to be signed within the next couple of months, the EU had been insistent on having an exclusive chapter on data exclusivity while the Indian negotiators have been denying giving any relaxation on this. This has raised widespread concern amongst the domestic drug makers

  28. EU-India FTA: Update • Indian Prime Minister’s office: Nothing in FTA beyond TRIPS/domestic law • Concern on enforcement measures (EC trying to argue that it is within Indian law) • Investment provisions (allowing EU MNCs to sue Indian government over health policies, drug price control, etc.) • EC and US bilateral pressure on India to change domestic law to include TRIPS-plus provisions outside of FTA • India also negotiating FTA with EFTA (Switzerland, Iceland, Norway, Lichtenstein)

  29. Can you talk about the importance of honing in on an expertise and the importance of learning more about HIV and resources that people can use to learn more?

  30. What are your own experiences first dabbling with media and what advice can you give to the people in the audience to encourage them on why their voices are important and tips for them to start and continue doing media work.

  31. The personal is political:Framing the issue Skills-building Time! Create Our Own Media: Social Media & Blogging My Words are My Weapon: Public Speaking Using Images: Video Blogging

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