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Understanding the Administration on Developmental Disabilities (ADD) and Its Key Functions

The Administration on Developmental Disabilities (ADD) is a small program office with a comprehensive mission to ensure individuals with developmental disabilities and their families can access culturally competent community services. Despite common misconceptions about its size and budget, ADD focuses on systemic change and capacity development rather than direct services. It collaborates with state agencies to promote independence and inclusion for individuals across the lifespan, helping millions of Americans with developmental disabilities and other needs. **Relevant

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Understanding the Administration on Developmental Disabilities (ADD) and Its Key Functions

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  1. HHS Programs: Key features of programs funded by the Administration on Developmental Disabilities (ADD)Jamie Kendall, Deputy CommissionerJune 23, 2011

  2. Myth: The Administration on Developmental Disabilities (ADD) is a large program office • Reality: ADD is a small program office with an oversized statutory mission, “to assure that individuals with developmental disabilities and their families participate in the design of and have access to needed culturally-competent community services, individualized supports, and other forms of assistance that promote self-determination, independence, productivity, and integration and inclusion in all facets of community life”

  3. Myth: ADD has a substantial discretionary budget to support the efforts of the DD Network. • Reality: There are estimated to be approximately 5 million Americans with intellectual/developmental disabilities (consistent with the DD Act definition), and many of the efforts of our programs are cross-disability, serving many people with other disabilities as well, yet the agency budget for FY11 is about $186M.

  4. Funding Amounts

  5. Myth: The Developmental Disabilities Act, Federal legislation, focuses on the federal level • Reality:  Although Federal legislation, our programs see the real action at the State level

  6. Myth: ADD focuses upon providing direct service to people with DD. • Reality: ADD is responsible for four programs under the DD Act (DDC, UCEDD, P&A, PNS) and HAVA that are primarily focused upon systems change and capacity development, with some elements of direct service in all of the programs.

  7. Myth: ADD oversees State DD agencies across the country. • Reality: The State DD Agencies work as partners (and sometimes adversaries!) with the ADD entities in each state, but they are state units that generally operate as a component of the State Medicaid Agency or as a State office with delegated authority through the State Medicaid agency  to implement DD services.

  8. Myth: ADD, because we are located at HHS within the Administration for Children and Families, we primarily serve children • Reality:  ADD serves adults and children.  We serve individuals and their families across the lifespan

  9. Myth: Collaboration is new to our programs • Reality:  DD Act programs are the embodiment of interoperability

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