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Short-Term Priorities and Future Plans for the UK Renal Registry Dataset

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The UK Renal Registry, led by David Bull and Terry Feest, highlights review and alignment of data collection practices to ensure the dataset supports accurate analysis. Focus areas include minimum dataset reviews, incorporation of new elements like paediatric data, vascular access details, and acute kidney injury (AKI) metrics. Administrators aim to streamline data transmission in renal units while supporting needs identified by commissioners. Collaborative efforts will also address the need for appropriate flags within datasets, ensuring a more manageable and useful registry.

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Short-Term Priorities and Future Plans for the UK Renal Registry Dataset

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  1. The Renal Association UK Renal RegistryRenal Registry dataset & plans for the dataset.Short term priorities including additional items to be collected David Bull Terry Feest

  2. The Renal Association UK Renal RegistryThe notes that are left over David Bull Terry Feest

  3. Dataset plans • Review of minimum dataset • As James Medcalf is with the NRD • Will align the two • Reduce, start from what is analysed, add a few new areas • End result will be a smaller dataset.

  4. Dataset plans • Paediatric data • Vascular accessPD data • Acute Kidney InjuryCKDConservative care • Drugs – date, name, frequency, dose route

  5. Paediatric data • Ready to incorporate in to routine data transmission • Dataset is defined • Units have to liaise with you to ensure transmission

  6. Vascular access and PD data • Spreadsheet exercises in place • Thus datasets defined • Need to incorporate into routine data collection

  7. AKI in renal units • Wanted by commissioners • Dataset being defined • Short term • No.of dialyses • Comorbidities • Outcome diagnosis • CQUIN

  8. AKI/CKD/Conservative care eGFR 25 What was last eGFR? Can system backfill? Is it new? Follow forward – does it recover? Sort into AKI, incident CKD, Prevalent CKD Will need appropriate flag Conservative care on timeline

  9. RPV CQUIN • CQUIN 75% and 95% triggers • Registry will monitor • 20 pilot sites

  10. AKI/CKD/Conservative care • Linked through need to sort/define • Section 251 being approached – • 5OK, • 4 new • Anonymise by NHS number scrambling

  11. Moving into a new world • Together!

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