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Benny.Eklund@lul.se

Overcoming Legal Challenges to eHealth Clinical Data Access Confronting the Swedish Data Protection Board and the road to new national legislation. Benny.Eklund@lul.se. Internet banking and Health Care in the same way. Benny.Eklund@lul.se.

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Benny.Eklund@lul.se

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  1. Overcoming Legal Challenges to eHealthClinical Data AccessConfronting the Swedish Data Protection Board and the road to new national legislation Benny.Eklund@lul.se

  2. Internet banking and Health Care in the same way Benny.Eklund@lul.se

  3. A system that can be considered as analogous to Internet banking, but for health care

  4. Why haven’t such services been rolled out in large scale in the health care? • The average age of patients are significant higher for patients compared with the most active bank customers. • Information about a bank customer’s bank account is much more structured compared to a medical record. • It has not earlier been available secure and cost effective solutions. • Banks are in a better position to charge their customers for those services

  5. Med. Record, Hosp Medical Record, GP Drugs Fees Future Visits Safe “e-mail” to GP Change of GP Transportation Booking transp. Encyclopedia, Drugs Encyclopedia, Med. Patients requests of future functions

  6. Trying to answer questions like • Which groups of patients benefits most? • Which kind of services has the strongest demand? • What kind of technical solutions are most suitable? • What is the best layout and logic is best for the user?

  7. Patient view on Health Care? The medical professional must be a partner instead of someone who make all the decisions

  8. Can patients understand?

  9. Elderly can’t use Internet

  10. Distribution of Age

  11. § The Swedish Data Inspection Board

  12. New legislation in Sweden 1:st July 2008 • Possible to interconnect different EHR:s • Patients has the right to refuse • Patients may block certain parts of the EHR • Patient may directly access EHS via Internet

  13. How many doctors can access your Medical Record? 1999: 2-4 Doctors

  14. How many doctors can access your Medical Record? 2006: 1000 Doctors

  15. How many doctors can access your Medical Record? 2011: 30.000 Doctors

  16. Patient controlled access A coming future!

  17. Four possible statements: Most possible access! I open up myself from home! I’m opening at the GP:s surgery! Keep it as it is!

  18. Why those efforts? • Sooner or later there will be a demand

  19. “People often overestimate what will happen in the next two years and underestimate what will happen in ten.” Bill Gates

  20. Balance Medical Safety vs Privacy

  21. Benny.Eklund@lul.se

  22. Possible set of services: • Book or rebook a visit • Pay a visiting fee • Examine the medical record • Put a question to their GP • Fill out a Health Declaration Form • Print out drug and lab list before an travel abroad • Change GP (when moving or similar) • Update phone number and name of close relative • Mask or block sensitive data • Track the referral

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