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Co-occurring Mental Illness & Mental Retardation / Developmental Disabilities

Co-occurring Mental Illness & Mental Retardation / Developmental Disabilities. A Perspective from Both Sides of the Fence. About Me. I am a younger sibling I became my sister’s guardian as a result of my mother’s mental status (Alzheimer's)

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Co-occurring Mental Illness & Mental Retardation / Developmental Disabilities

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  1. Co-occurring Mental Illness & Mental Retardation / Developmental Disabilities A Perspective from Both Sides of the Fence

  2. About Me • I am a younger sibling • I became my sister’s guardian as a result of my mother’s mental status (Alzheimer's) • I am a Licensed Clinical Social Worker who has worked in community mental health and substance abuse settings for approximately 30 years • I am sharing with you my experiences/thoughts along with those of other family members and colleagues.

  3. Perspectives: • As a Family Member • Parental • Sibling • As a Caregiver • As a Professional

  4. Parental Perspective • Impact on Parents • Financial: • High cost of care • Emotional: • Stress • Dealing with “identified consumer” • Dealing with the “System” • Self-perception • Stigma • Ability to parent other children • All family events revolves around “identified consumer”

  5. Sibling Perspective • Psychological Effects of Childhood Trauma • What is Trauma • What the family member thinks is trauma! • Examples may be: • Inappropriate acting out behavior • Self-abuse • Sexual • Aggression • Verbal • Two Key Factors affecting Individual response • Resiliency • Vulnerability • Traditional Family Relationships are Altered • Parent / Child • Child/Parent • Sibling / Sibling

  6. Sibling Perspective Continued • Psycho-social Development of Individual Application of COA framework • Common Problems • Guilt • Anxiety • Shame • Anger • Depression • Common Roles (Dr. Claudia Black) • Responsible Child • Adjuster Child • Acting-Out Child • Placater Child

  7. Caregiver Perspective • Understanding & Navigating the “System of Care” • Turnover of Case Managers • Adequate Communication

  8. Professional Perspective • Loss of creditability related to self-disclosure • A result of the consumer movement is that it is becoming safer to disclose • Personal experience improves sensitivity to family/consumer perceived system barriers • Professional expertise can assist with caregiver’s role.

  9. Closing Thoughts • Recognition of diversity of “voices” within the family and consumer community; and recognition that oftentimes these “voices” do not agree with each other. • Stigma affects the whole family

  10. Closing Thoughts Continued • Partnerships: Each “system” has strengths that can be adapted: • ADA • Educating and supporting family members • Prevention and Early Intervention • MRDD • Person Centered Planning • Psychiatric Services • Expertise in differentiating diagnostic symptoms from behavioral issues

  11. What is happening in Missouri? • Psychiatric Services and MRDD is engaged in dialogue regarding those with dual diagnosis of MI/MRDD • The two systems have reached agreement: • This cohort of consumers is a priority • There should be joint funding • There will be a joint pilot project

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