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Pediatric Ventricular Assist Devices: Outcomes and Complications

This meeting discusses outcomes and complications in pediatric patients with ventricular assist devices. Published manuscripts, ongoing projects, and research status will be presented.

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Pediatric Ventricular Assist Devices: Outcomes and Complications

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  1. Annual Fall MeetingNovember 13, 2016

  2. Data entry completion

  3. Published Manuscripts • Outcomes of children implanted with ventricular assist devices in the United States: First analysis of the Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs) • Blume, Elizabeth D. et al. The Journal of Heart and Lung Transplantation • Adverse Events in Children Implanted with Ventricular Assist Devices in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs) • Rosenthal, D.N. et al. The Journal of Heart and Lung Transplantation • Outcomes of pediatric patients supported with continuous-flow ventricular assist devices: A report from the Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs) • Rossano, Joseph W. et al. The Journal of Heart and Lung Transplantation

  4. Projects in process • Infectious Complications of Ventricular Assist Device use in Children in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support S. Auerbach Research Status: ISHLT 2015. Finalizing manuscript • Temporary Circulatory Support in Children in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support A. LortsResearch Status: ISHLT 2015 manuscript in draft • Utilization and Outcomes of Ventricular Assist Device Support in Adult Congenital Heart Disease: An analysis of the Intermacs C. VanderpluymResearch Status: ISHLT 2015 Manuscript submitted to JHLT • Pedimacsand PHIS databases to evaluate: Resource Utilization in Pediatric Patients Supported with Ventricular Assist Devices J. Rossano Research Status: Linkage in process at CHOP • Changes in Renal Function Following Left Ventricular Assist Device Placement in Pediatric Patients J. Friedland-Little Research Status: Accepted AHA 2016 • Outcomes of infections in children and young adults with ventricular assist devices S. Chen Research Status: Submitted ISHLT • PHTS-Pedimacs linkage: Sutcliffe, Research Status: Submitted ISHLT

  5. 2017 project directions • Single ventricle/ CHD • Neuro AE • PHIS $$ • Rehospitalizations/discharge • Quality of life

  6. 28 institutions have participated in writing groups 58 individual investigators

  7. How to Get Pedimacs Reports and Data • Pedimacs reports are easily accessible online as a part of the Intermacs statistical reporting • Public Statistical Report –http://intermacs.org/reports/public-statistical-reportBiannually, an updated Pedimacs Statistical Report is released including overall cohort patient and implant characteristics and outcomes such as survival estimates and competing outcomes • Quality Assurance Site Report – http://intermacs.org/reports/quarterly-site-reports Site administrators can download a site specific comparison report comparing patient and implant characteristics and outcomes at their site with the overall Pedimacs cohort on a biannual basis • Data Quality Site Report – http://intermacs.org/reports/quarterly-site-reports A snapshot of key data elements are provided to Site Administrators twice a year and are a part of the Pedimacs auditing process Coming Soon • Research SAS Datasets – http://intermacs.org/reports/research-sas-datasetsEach quarter the many forms collected in Pedimacs are checked and combined into analytical datasets suitable for research and analysis • Instantaneous Downloadable Excel Spreadsheets, Web Based Cohort Comparisons, and User Specified Outcome Analytics Who is my site administrator?

  8. Participation • Quality of Life Committee • Coordinator Council • Adjudication committee/ Adverse Events • Writing groups • International participation • Education Committee

  9. Please join us for the Intermacs 11th Annual Meeting March 3-4, 2017 Westin Peachtree Plaza 210 Peachtree Street NW Atlanta, GA 30303

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