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Arlene Wilkie Chief Executive

Arlene Wilkie Chief Executive. The role of Regional Neurological Alliances. We are the only collective voice for the 8 million children, young people and adults in England with a neurological condition. A better quality of life for each individual diagnosed with a neurological condition

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Arlene Wilkie Chief Executive

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  1. Arlene Wilkie Chief Executive • The role of Regional Neurological Alliances

  2. We are the only collective voice for the 8 million children, young people and adults in England with a neurological condition. A better quality of life for each individual diagnosed with a neurological condition To raise awareness and understanding of neurological conditions to ensure that every person diagnosed with a neurological condition has access to high quality, joined up services and information from their first symptoms and throughout their life

  3. Our national members

  4. Northern NA Lancashire and South Cumbria NA Tees Valley, Durham and N. Yorkshire NA Greater Manchester NA Lincolnshire NA Merseyside and Cheshire NA Hounslow and Richmond Neurological Partnership Gloucestershire NA London NA Swindon and Wiltshire NA Hampshire NA SWANO West Berkshire NA Oxfordshire NA YHANO BANO CAN-DO Regional Neurological Alliances http://goo.gl/dBVFs

  5. Our aims for our regional work • To speak for neurological community with an authoritative andunitedvoice • To create a network of RNA’s across England • To support new RNA’s and to strengthen existing RNA’s

  6. Why have an RNA? • Policy set nationally - priorities determined locally • Local services, local people with local knowledge • Easier for local commissioners to talk with one organisation • Identify and campaign for common causes across all neuro conditions • Exchange information – locally and through the network • RNA better placed to contribute…….. …One credible, united group speaks with a louder voice and is better heard

  7. What do RNAs look like? Size SHA PCT Membership StaffVolunteers Constitution Looser Associations Independent Charities

  8. Common principles • Reflect the Alliance at local level • Engagement with service users and carers • Influence decision-making at local level • Provide a credible, united voice and point of contact for commissioners across the neuro spectrum

  9. What have they achieved? ‘Stronger together’ https://goo.gl/yl116 WBNA: Rare Conditions Nurse, hydrotherapy pool, pain surveys, conferences GMNA: 1 member of staff, PCT funded user surveys and research SWANO: website, workforce training sessions, directory of local services

  10. More examples…. • Users directly involved at heart of planning • Acted as conduit for service user views • Acted as the single point of contact for all matters neuro re commissioners • Run training / awareness days • Produced information leaflets • Set up charity, raised funds • Forged alliances with other alliances • Secured a new Neuro Consultant post • Membership of hospital boards • “What you need to know…” adopted in hospitals

  11. What can you do now? Take action! • Use the campaigning document • Sign up here http://goo.gl/yInPr Network • Circulate info to committee and members • With the RNA network • Follow us on Twitter @NeuroAlliance Help us with national consultations

  12. Action is a necessity, not a choice. • http://goo.gl/yInPr Thank you! arlene.wilkie@neural.org.uk @NeuroAlliance

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