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Social impacts of terminal illness. What?. Social impact Social consequences for the individual Loss of normal activities Pre-death grief Guilt Burden on family and friends ‘Getting your affairs in order’ Consequences for society Lost production Cost of healthcare
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What? • Social impact • Social consequences for the individual • Loss of normal activities • Pre-death grief • Guilt • Burden on family and friends • ‘Getting your affairs in order’ • Consequences for society • Lost production • Cost of healthcare • Short and long term effect on family and friends, especially children • Representation in the media
Guilt • Parents: leaving children, losing children • Children: It’s my fault? • Partners: Helplessness • Grief • The tragic loss of normality • Welcome to Holland • Isolation • What do you say? • How do you have a normal social relationship? • The Stuff • Treatment, finances, funeral, ...
Grief “Why don’t you just die andget it over with?” (Jane Turner lecture) Welcome to Holland (Not about terminal illness)
Normal? “It’s not about the years in your life, it’s about the life in your years”
Links • A mother’s journey • Give sorrow words – cancer and communication • Ipswich hospice