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Understanding the SEER Program: Cancer Data Collection and Analysis in the U.S.

The Surveillance, Epidemiology, and End Results (SEER) program, a vital initiative by the National Cancer Institute, gathers and disseminates cancer incidence and survival statistics from population-based cancer registries across approximately 26% of the U.S. population. Established in 1973, SEER encompasses diverse geographic areas and demographic groups, aiming to provide accurate data on all cancer diagnoses in its jurisdictions. The program supports cancer research by offering annual public data files, training resources, and tools for data analysis, thereby enhancing our understanding of cancer trends and outcomes in the U.S.

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Understanding the SEER Program: Cancer Data Collection and Analysis in the U.S.

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  1. TUMOR REGISTRIES THE SEER PROGRAM

  2. The SEER program • The Surveillance, Epidemiology, and End Results is a program of the National Cancer Institute • seer.cancer.gov • The SEER collects and publishes cancer incidence and survival data from population-based cancer registries covering ~26% of the population in the U.S.

  3. Background • SEER began collecting data in1973 in the states of Connecticut, Iowa, New Mexico, Utah, and Hawaii, as well as metro areas of Detroit and San Francisco-Oakland • 1974-75  metro Atlanta and Seattle Puget Sound • 1978  10 predominantly black rural counties of Georgia • 1980  American Indians in Arizona • Prior to 1990  New Orleans (rejoined in 2001), LA; New Jersey (rejoined in 2001); Puerto Rico (1973-1989); Alaska • 1992  Los Angeles county and 4 counties in the San Jose-Monterey area • 2001 Kentucky, remaining counties of California

  4. SEER areas

  5. Background, cont’d • Joint effort by the NCI, the CDC, and the North American Association of Central Cancer Registries (NAACCR) • To guide state registries to achieve data content and compatibility for pooling and improving national estimates

  6. Goals of the SEER • Collect complete and accurate data on all cancer diagnosed among residents of the geographic areas covered by SEER cancer registries • Quality control / quality improvement • Report on cancer burden (incidence, mortality, survival) overall, and in subgroups of the population • Variations / changes in patterns and trends over time

  7. Goals of the SEER, cont’d • Provide research resources to the general research community including a public use file each year, and software to facilitate the analysis of the database • Provide training materials and web-based training resources to the cancer registry community.

  8. Source: NIH publication No. 05-4772; September 2005

  9. Source: NIH publication No. 05-4772; September 2005

  10. The SEER database • The SEER program collects and publishes cancer incidence and survival data from 15 population-based registries that cover ¼ of the U.S. population. • Data on more than 6 million in situ and invasive cases are included in the database • 350,000+ cases being added each year from the SEER coverage areas.

  11. Contents of the SEER database • Demographics • Detailed tumor characteristics •  cancer stage (among many other measures) • Vital status and cause of death •  mortality, survival • SEER data linked with Medicare • Enhances the richness of each of the databases

  12. Interactive features http://seer.cancer.gov/statfacts/index.html • Great to obtain quick stats as you’re writing a grant application or a manuscript.

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