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This guide provides in-depth information on screening, diagnosis, assessment, and evidence-based interventions for individuals with ASDs. It highlights the importance of early intervention, collaborative decision-making, and systematic research reviews to improve outcomes. Sponsored by various organizations and built on core values, the guide emphasizes the interdisciplinary and family-centered approach to ASD interventions.
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ASDs now affect one in every 110 children • Lifelong effect on functioning, relationships, independence Centers for Disease Control and Prevention
Focused on improving quality of lives of individuals with ASDs and families • Through better screening, diagnosis, assessment and • now, evidence-based • intervention planning
First publication focused on screening, diagnosis, and assessment • Well-received by parents and professionals
“It is essential for all those working or living with children with ASDs to have access to thorough, comprehensive information, which these Guidelines provide ... Children with ASDs and their families will benefit from the information and thoughtful collaboration that has occurred as result of compiling these Guidelines.” Dr. Georgina Peacock Centers for Disease Control and Prevention
Context of second publication • Summaries of six recent nationally recognized systematic research reviews of evidence-based ASD interventions
National Professional Development Center on Autism Spectrum Disorders (NPDC) • Centers for Medicare and Medicaid Service (prepared by IMPAQ) • National Autism Center (NSP) • Agency for Healthcare Research and Quality (AHRQ) • Stanford Autism Research Team (StART) • Evaluation of Comprehensive Treatment Models for Individuals with Autism Spectrum Disorders (CTM)
Access to information for families, healthcare professionals, educators, and service providers • Help for informed decisions on selection, implementation, and monitoring of ASD intervention • Encourages collaboration across systems to benefit individuals and families
Collaboration between 50 parents & professionals • Driven by knowledge that early intervention is key to improved outcomes
Sponsors reflect wide collaboration • Thompson Foundation for Autism • Department of Mental Health • Department of Elementary and Secondary Education • Mercy Children’s Hospitals – St. Louis and Springfield
Built on core values • Informed professional judgment • Early and ongoing intervention • Family-centered care • Interdisciplinary teams • Community collaboration
Key Concept: Emphasis on evidence-based practice • Current benchmark in fields of medicine, psychology, education, and other health professions
Key Concept: Scientific research informs evidence-based practice • Acknowledgement that current research provides important information, but more research is needed
Key Concept: Evidence-based practice is informed by professional expertise • Scientific research is critical, but professional expertise and judgment guide interpretation and application of research
Key Concept: Evidence-based practice includes consideration of individual characteristics • Decisions must be made In context of strengths, concerns, values, and preferences of individual and family
Key Concept: Importance of systematic research reviews • Guide gathers six respected reviews into a single resource summarizing and synthesizing rapidly growing knowledge base on interventions
Key Concept: Effective interventions can lead to improved outcomes • Reviews conclude: Positive outcomes are maximized when the individual is considered and interventions are begun early
Current research has limitations • A starting point for determining interventions likely to achieve positive outcomes • Research evidence is only one component of evidence-based practice • More research is needed • Initiative will update Guide electronically as new evidence-based research emerges
Improved outcomes require a continuous, ongoing process which can be complex • During a six-month period, children with ASDs receive an average of six different types of intervention services provided by an average of four different agencies and seven different professionals (Kohler, 1999)
Guide provides access to systematic reviews and describes collaborative approach to facilitate the intervention process • Crosses systems • Centered on families • Focused on the individual
Published Summer 2o12 • Free copies available thanks to Missouri Foundation for Health • Order online at: www.autismguidelines.dmh.mo.gov