The Lifespan Respite Care Program: Current Status and Future Directions

1. The Lifespan Respite Care Program:Current Status and Future Directions The Many Faces of Respite - 2011 Lifespan Respite Conference Glendale, AZ November 2, 2011 U.S. Department of Health and Human Services, Administration on Aging, Washington DC 20201 PHONE 202.619.0724 | FAX 202.357.3523 | EMAIL aoainfo@aoa.gov| WEB www.aoa.gov

2. The U.S. Administration on Aging Created in 1965 – Older Americans Act Focal point and advocate for older persons and their caregivers Supports the Aging Services Network 56 State and Territorial Units on Aging 629 Area Agencies on Aging 246 Tribal and Native organizations 18,000 service providers Thousands of volunteers 2

3. AoA and the Aging Network Programs and Services Supportive Services (Title III B)– adult day care, information & assistance, transportation Nutrition Services (Title III C 1 & 2) Preventive Health Services (Title III D) National Family Caregiver Support Program (Title III E) Elder Rights – elder abuse investigations, Long-Term Care Ombudsman Program (Title VII) National Demonstrations (Title IV) Other National Programs (non-OAA) Alzheimer’s Disease Supportive Services Program Lifespan Respite Care Program

4. Respite: The Challenges Multiple Programs Multiple Funding Sources Multiple Entry Points Limited Providers Caregiver Awareness Other?

5. What are Lifespan Respite Care Programs? Defined by the Lifespan Respite Care Act of 2006 (PL109-442) as: Coordinated systems of accessible, community-based respite care services for family caregivers of children or adults with special needs

6. Federal Program Objectives Enhance and Expand Respite Services Improve Coordination and Dissemination Improve Access and Fill Service Gaps Improve Overall Service Quality Volunteer Recruitment, Training & Retention Raise Public Awareness

7. Mandatory Uses of Funds Development or enhancement of State and local Lifespan Respite Systems Provision of respite services (planned or emergency) Recruitment and training of respite providers and volunteers Information for caregivers about available respite Assistance in gaining access to respite services

8. Program Implementation Authorized by Congress in 2006 Due to be Reauthorized in 2012 Funded in 2009, 2010 & 2011 at $2.5 Million President’s FY 12 Request: $10 Million Competitive Grant Process 29 States and DC funded between 2009 & 2011 Up to $200,000 for three year projects TA Activities – ARCH National Respite Network & Resource Center Expansion Grants – 7 states and DC in 2011

9. Lifespan Respite States AK WA ME MT ND VT MN OR NH NY WI MA ID SD MI RI WY Hawaii CT PA IA NE NJ IN OH NV UT IL DE WV VA CO CA KS MD MO KY DC NC TN OK AR SC AZ NM GA AL MS LA TX FL 2009 Lifespan Respite States 2010 Lifespan Respite States 2011 Lifespan Respite States

10. Lifespan Respite Grantee Activities Environmental Scans/Needs Assessments Defining Stakeholder Roles (ADRCs, Coalitions, Others) Connecting ADRCs and Respite Coalitions Public Awareness Campaigns Website/Database Development & Expansion Partnerships with the Faith Community Volunteer Training and Recruitment Respite Provision – Gap Filling Provider Training Protective Services Partnerships/Emergency Respite

11. 2011 Program Expansion • 7 States & DC Funded • Builds on Existing Projects • Focus on Respite • Data Collection • Key Expansion Activities: • Vouchers/Flex Accounts/Affordable Respite Options • Quality Measures • Enhance Consumer Choice and Control • Standardize Referral Protocols • Formalize Marketing Strategies • Grow and Strengthen Coalitions

12. Looking Ahead Reauthorization FY 2012 Budget and beyond Technical Assistance Outcomes/Performance/Data Future Grant Opportunities

13. Contact Me Greg Link, MA Aging Services Program Specialist U.S. Administration on Aging Washington, DC Greg.link@aoa.hhs.gov U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES, ADMINISTRATION ON AGING, WASHINGTON DC 20201 PHONE 202.619.0724 | FAX 202.357.3523 | EMAIL aoainfo@aoa.gov| WEB www.aoa.gov